Wednesday, July 7, 2010
Stem cells just arrived
Weds am
Deb is moving slowly but she is moving! She took her morning meds and ate a modest breakfast. The chemo has really begun to kick in. Deb is very nauseous.
The stem cell transplant is at 10:30am and is not much more than a transfusion. However, the magic has been done behind the scenes in using the human growth hormones to super-stimulate Deb's body into producing beaucoup stem cells that flood her blood so they can be collected for use in this infusion.
More later...
Tuesday, July 6, 2010
Tuesday evening
After Deb's chemo this morning we were to get a take home infuser-a portable baby-bottle looking pressurized bottle that attaches to Deb's port.It never showed up in spite of numerous searches and a man sent to look for it. We waited and waited until I sensed that Deb had endured all she needed to, so I told the nurses that I was taking her home to feed her and get her in bed for a nap and then I'd be back to pick up the infuser. Sometimes a caregiver has to make things happen.
I brought her home and got her settled then went back. Finally the nurse found out that the administrator had never ordered it at all. Deb would have spent the day there!
Then I had to go to the hospital pharmacy. Last week angel-pharmacist Carla worked an entire day with all levels of Deb's insurance company trying to get Deb's essential pain killer refilled. We finally got enough pain meds to get us thru the weekend. So, in consult with her, I went to see Dr. Nair's angel-nurse Gina and she got a modified prescription that angel-pharmacist Carla thought would get past the hurdles the insurance company was throwing up. When I finally got the hand-signed script to Carla, she called it in and they immediately approved the pain killer! Way to go team! Carla went the extra ten miles to do what was right for Deb. Thanks!
I had to get refills of day-to-day meds as well and also supplies to use with Deb's port since I'm having to give her at-home infusions thru the port. It is still a very serious scary thing to mess with tubes connected almost into one's heart. But, it is much easier to do after practice.
So, late afternoon I was finally done and brought a large paper grocery bag of meds back. Deb was still resting so I made her some fresh Jello and tea. She ate one small bite of Jello and a tiny slice of peeled apple for supper. She is so tired and sleepy. Right now she is in her recliner and napping again. The chemo is really kicking in.
Nine am in the morning she gets labs, then at 10:30 the stem cell transplant.
My personal life right now is somewhat boring and I spend most of the evening browsing the internet and planning home improvements and airplane mods I'd like to do if I were home and able. I ordered a few study DVD's yesterday so I can renew my Flight Instructor Certificate by Sept. Have to do this every two years. Last night I found a video of the first guitar song I ever loved at about age 5 : Wildwood Flower by the Carter family performed by the family matriarch Mother Maybelle. It's also the first song I learned to play on an old guitar my grandfather bought from a soldier headed to the front in WWII. It sounded just like the old 78 RPM record I listened to with my grandmother back in the early '50's.
Makes me feel like a senior citizen when I start dwelling on the good old days so much.
How about you?
Vern
I brought her home and got her settled then went back. Finally the nurse found out that the administrator had never ordered it at all. Deb would have spent the day there!
Then I had to go to the hospital pharmacy. Last week angel-pharmacist Carla worked an entire day with all levels of Deb's insurance company trying to get Deb's essential pain killer refilled. We finally got enough pain meds to get us thru the weekend. So, in consult with her, I went to see Dr. Nair's angel-nurse Gina and she got a modified prescription that angel-pharmacist Carla thought would get past the hurdles the insurance company was throwing up. When I finally got the hand-signed script to Carla, she called it in and they immediately approved the pain killer! Way to go team! Carla went the extra ten miles to do what was right for Deb. Thanks!
I had to get refills of day-to-day meds as well and also supplies to use with Deb's port since I'm having to give her at-home infusions thru the port. It is still a very serious scary thing to mess with tubes connected almost into one's heart. But, it is much easier to do after practice.
So, late afternoon I was finally done and brought a large paper grocery bag of meds back. Deb was still resting so I made her some fresh Jello and tea. She ate one small bite of Jello and a tiny slice of peeled apple for supper. She is so tired and sleepy. Right now she is in her recliner and napping again. The chemo is really kicking in.
Nine am in the morning she gets labs, then at 10:30 the stem cell transplant.
My personal life right now is somewhat boring and I spend most of the evening browsing the internet and planning home improvements and airplane mods I'd like to do if I were home and able. I ordered a few study DVD's yesterday so I can renew my Flight Instructor Certificate by Sept. Have to do this every two years. Last night I found a video of the first guitar song I ever loved at about age 5 : Wildwood Flower by the Carter family performed by the family matriarch Mother Maybelle. It's also the first song I learned to play on an old guitar my grandfather bought from a soldier headed to the front in WWII. It sounded just like the old 78 RPM record I listened to with my grandmother back in the early '50's.
Makes me feel like a senior citizen when I start dwelling on the good old days so much.
How about you?
Vern
Tuesday am
You can tell it's the day after a holiday by all the increased activity and personnel around the hospital.
Enjoyed the trip in this morning on the hotel van because the Markham House maintenance engineer was on the van working on the ac.He and I talked Air Force. He was in aircraft maintenance during the VN war and served mostly in Thailand in pressurization and life support. He was familiar with my old squadron from NKP ,Thailand, the 23d TASS flying OV-10 Broncos. When the unit left Viet Nam and came to Austin,Tx where I joined the unit.
We are in a room now with an older couple from Deb's childhood home and family homestead,Adamsville,Tn. That is also where Buford Pusser the Walking Tall sheriff was from.Deb knew him from childhood.
Deb is finishing her chemo.24 hours from now she gets her stem cell transplant. Although it is a huge important potentially life saving event to us,the nurse says it will be anti-climatic since it mostly resembles a transfusion to us. In the coming days the chemo will really kicknin and Deb's immune system will be erased, then rebuilt.So, the next one-three weeks will be challenging to see how Deb reacts to the chemo as well as the stem cells.
Thanks for your support. Amanda is in the last days before her baby comes and we would love to be back home for the arrival.
Vern
Enjoyed the trip in this morning on the hotel van because the Markham House maintenance engineer was on the van working on the ac.He and I talked Air Force. He was in aircraft maintenance during the VN war and served mostly in Thailand in pressurization and life support. He was familiar with my old squadron from NKP ,Thailand, the 23d TASS flying OV-10 Broncos. When the unit left Viet Nam and came to Austin,Tx where I joined the unit.
We are in a room now with an older couple from Deb's childhood home and family homestead,Adamsville,Tn. That is also where Buford Pusser the Walking Tall sheriff was from.Deb knew him from childhood.
Deb is finishing her chemo.24 hours from now she gets her stem cell transplant. Although it is a huge important potentially life saving event to us,the nurse says it will be anti-climatic since it mostly resembles a transfusion to us. In the coming days the chemo will really kicknin and Deb's immune system will be erased, then rebuilt.So, the next one-three weeks will be challenging to see how Deb reacts to the chemo as well as the stem cells.
Thanks for your support. Amanda is in the last days before her baby comes and we would love to be back home for the arrival.
Vern
Monday, July 5, 2010
Deb and Israel sharing a chemo room this morning
Met another aviatior from NW Ark who owns a V tail Bonanza. He has been under the care here for almost 20 years. After his first treatment under Dr Barlogie, they had seven normal years before any more treatment was needed. Surely it has gotten better since they began we pray!
Bubba and Ima Jo are in the next room over and looking good.
Deb is eating cup after cip of ice to counteract the chemo affrcts on her mouth.
Sunday, July 4, 2010
Chemo meds
Just in case you are curious:
The Chemo meds
+++++++++++++++
Velcade
Dexamethasone
Revlimid
Melphalan
Cyclophosphamide
Etoposide
Cisplatin
Doxorubicin
Ondansetron
Lovenox
Neuogen
Levofloxacin
Fluconazole
Acyclovir
Pantoprazole
There are 16 more that we take at home.
The Stem Cell infusion is on July 7.
f
The Chemo meds
+++++++++++++++
Velcade
Dexamethasone
Revlimid
Melphalan
Cyclophosphamide
Etoposide
Cisplatin
Doxorubicin
Ondansetron
Lovenox
Neuogen
Levofloxacin
Fluconazole
Acyclovir
Pantoprazole
There are 16 more that we take at home.
The Stem Cell infusion is on July 7.
f
View out our hotel window-golfers across the street
Deb presents Antoinne a gift-Hope Beads
Deb makes these and has been gifting special angels.
Here is the text:
This is a special gift for you from Deb.
Deb and friends have made these Hope Beads as an act of love for you.May God bless you on your life journey wherever it may lead.
The blessing is found in the meaning of the components:
Bee charm: meaning of the name Deborah. Bees are industrious, proactive creatures, making plans and provision for the future.
Black bone,white bone(fish vertebrae)-strength in the face of the unknown
Amber-God is present
Red coral-blood of Jesus
Turquoise-spiritual journey for wisdom
Green cording-green is the universal symbol of life
Happy Fourth everyone!
We are in 7C getting labs and chemo. Another couple from the DC area is sharing the room with us. She was a high school music teacher. He had been a member of the USMC band, 'Sousa's own.' Their son is now a professional percussionist.
How cool to be in the room with someone who played Sousa's music on the fourth of July!!!!
Deb has had the shakes and her cast iron tummy let her down last night. First time I remember her tossing cookies in almost 36 years of marriage. But all in all,the intense chemo has not been as severe as I heard others say. The Lord has been merciful.
At the moment, she just is getting a painful shot in her tummy. Think squished up face.
Hope everyone enjoys their holiday activities!
Vern
How cool to be in the room with someone who played Sousa's music on the fourth of July!!!!
Deb has had the shakes and her cast iron tummy let her down last night. First time I remember her tossing cookies in almost 36 years of marriage. But all in all,the intense chemo has not been as severe as I heard others say. The Lord has been merciful.
At the moment, she just is getting a painful shot in her tummy. Think squished up face.
Hope everyone enjoys their holiday activities!
Vern
Saturday, July 3, 2010
11:00 am in 7C and all's well
We arrived at 9 am and were assigned our private chemo room and nurse by 10. Deb still had bag chemo to complete from home and then the nurse started ordering the formulation of her strong in- hospital chemo. The nurse explained the short lifespan of various chemo mixes: some as short as 90 minutes for a bag costing thousands of dollars per bag. They are experts at giving any-nausea drugs here and we so appreciate the research and dedication to making this process more bearable.
Our nurse,also a Debbie, started working in the clinic the same month her brother began treatments here. Therefore, she has a even greater grasp of how this cancer and treatment affects a family.
Deb's labs came back for today and they look good. We know they will change as the chemo bites in.Deb will receive very strong cocktails of chemo that will take her to the verge of death and back.
This morning I was thinking back over all the fourth of July family events of my lifetime. When my grandparents were alive we had many such events which have become less common over the years. I have so many found memories of those hot July days, eating family meals together, sometimes at the lake with many family members now gone. Those are special memories. We even have one family memory of our three kids on the banks of the Arkanasa river watching fireworks from 25 years ago when I was going thru C-130 school at Little Rock,AFB.
Before we left the Markham house this morning we had a short Skype video conference with Katka,Trey, and Evelyn. It was so good to see them! Evelyn has grown so much!
The nurse has Deb eating ice constantly because one of the chemise causes bad mouth sores.
Enjoy your holiday weekend!
Blessings all!
Vern
Our nurse,also a Debbie, started working in the clinic the same month her brother began treatments here. Therefore, she has a even greater grasp of how this cancer and treatment affects a family.
Deb's labs came back for today and they look good. We know they will change as the chemo bites in.Deb will receive very strong cocktails of chemo that will take her to the verge of death and back.
This morning I was thinking back over all the fourth of July family events of my lifetime. When my grandparents were alive we had many such events which have become less common over the years. I have so many found memories of those hot July days, eating family meals together, sometimes at the lake with many family members now gone. Those are special memories. We even have one family memory of our three kids on the banks of the Arkanasa river watching fireworks from 25 years ago when I was going thru C-130 school at Little Rock,AFB.
Before we left the Markham house this morning we had a short Skype video conference with Katka,Trey, and Evelyn. It was so good to see them! Evelyn has grown so much!
The nurse has Deb eating ice constantly because one of the chemise causes bad mouth sores.
Enjoy your holiday weekend!
Blessings all!
Vern
Friday, July 2, 2010
New geography-now in '7C'
This is a new location and staff for Deb.After the labs confirmed her ability to endure,she got hooked up to various iv's and is receiving all manner of chemo.We also got hooked up to a portable electric pump bag that dispenses chemo all night until we come back to C7 tomorrow.We will spend the next four days here/home,then rest a day,then the stem cell infusion. When her body recovers and numbers are good, we go home to Ptc for a break.
Charting out med schedule
Vern's duty is to give meds as directed. Some vary in quantity or sequence. It's downright confusing at times. Many meds have 2-4 common names.
We start four days of home chemo tonight as well as IV chemo in a few hours.
Pain killers are not on the above charts since they are on an even different schedule. Some are 'as needed.'
Then there is the poor insurance company who will not authorize refills when needed because their records show we have plenty of pills left while our pill bottle shows empty. Then throw in the confusion of home pharmacy records vs Arkansas records.
But, praise God there are meds! We are so grateful for them!
Thursday, July 1, 2010
Thursday afternoon
Just saw Dr Nair.Waiting for triple port install,then back to Spine Center to meet with nurse Gena.
Lab report showed good response to chemo.Dr Nair used the term 'near remission' to describe the cancer protein levels.
Today was the first time we have been near a height measuring device so Deb stepped under it to be measured. We have been saying she had lost about two inches but we were wrong.
She has lost four inches of height! No wonder Deb seemed so short!
We just met with the lady doc who is going to install the port and she gave Deb much hope for a gentle procedure. Fear of a harsh doc like the first time has caused Deb much consternation.
Lab report showed good response to chemo.Dr Nair used the term 'near remission' to describe the cancer protein levels.
Today was the first time we have been near a height measuring device so Deb stepped under it to be measured. We have been saying she had lost about two inches but we were wrong.
She has lost four inches of height! No wonder Deb seemed so short!
We just met with the lady doc who is going to install the port and she gave Deb much hope for a gentle procedure. Fear of a harsh doc like the first time has caused Deb much consternation.
Just talked with Israel
We are in his old room. He's moved into a two bedroom with a full time caregiver. He seemed very happy to see me. He had a stem cell transplant yesterday.
Sent from my iPhone
Pray Please
Good Morning, Dear Ones,
Today about 1:30 we see Dr. Nair to get the "roadmap" for the next session. Immediately after meeting with him we go to have the Cook Triple inserted in my neck and chest. Chemo therapy begins on Friday and will continue daily for 4 or 5 days (Dr. Nair will clarify the time schedule this afternoon) and then I will have the stem cell transplant.
This morning I awoke with anxiety. Remembering what Dr. Bergstrom had said I take some medication to help. I may have to take even more. The anxiety affects my breathing and swallowing. I do not like it!
I am so hopeful that I will be able to get through this session without a trip to the hospital. Amanda and Jon's baby Eliana is due July 19 and Trey (without Katka and Evelyn) will be home August 12 -17. Each of these are major life events for me. I am so hopeful that I will be doing well so we can enjoy both events.
Since I cannot skip this treatment, I am appealing to you to continue to pray that I will respond quickly and well. Thank you for your faithfulness to pray for us and our family. We are very grateful.
Love to all.
Deb
Today about 1:30 we see Dr. Nair to get the "roadmap" for the next session. Immediately after meeting with him we go to have the Cook Triple inserted in my neck and chest. Chemo therapy begins on Friday and will continue daily for 4 or 5 days (Dr. Nair will clarify the time schedule this afternoon) and then I will have the stem cell transplant.
This morning I awoke with anxiety. Remembering what Dr. Bergstrom had said I take some medication to help. I may have to take even more. The anxiety affects my breathing and swallowing. I do not like it!
I am so hopeful that I will be able to get through this session without a trip to the hospital. Amanda and Jon's baby Eliana is due July 19 and Trey (without Katka and Evelyn) will be home August 12 -17. Each of these are major life events for me. I am so hopeful that I will be doing well so we can enjoy both events.
Since I cannot skip this treatment, I am appealing to you to continue to pray that I will respond quickly and well. Thank you for your faithfulness to pray for us and our family. We are very grateful.
Love to all.
Deb
Wednesday, June 30, 2010
Deb at McClards BBQ in Hot Springs, Ark
Deb felt good and we took the ride to Hot Springs and back. The area is heavily forested and Deb loved seeing all the trees. You may not know it, but Deb's father LT McIntyre ran a sawmill and later sold sawmill equipment as the southeast sales rep for Frick Equipment. Deb grew up playing in sawdust. Since we got married, Deb can smell the sawmills from miles away and loves to see them.
We ate BBQ and then rode the old strip in Hot Springs that once was the entertainment center of the US until Las Vegas and Atlantic City sprang up. It's dilapidated now and the crowds are small. We drove up on the mountain and had a great view of the area.
Coming back, we passed a gemstone store on the side of the highway. Another thing you may not know about Deb is that she and several friends make jewelry using semi-precious stones. Of course, Deb has made virtually nothing since last year. Well, that did not keep her from looking at all the stones. Arkansas has many gemstones: in fact, it has diamonds.
I was surprised when I showed Deb a sample card of small labeled gemstones. It probably contained about 50 samples. Deb could name all but one! I was so impressed!
Further on, a teenage girl was selling fresh tomatoes and veggies from a roadside stand. We bought field peas, okra, peanuts, and tomatoes. I cooked them for supper. Ummm good!
By the time we got back to Little Rock and drove the highways around town, Deb was shot and asked to be dropped off at the apartment while I took the rental car back.
Now, full of veggies and after a nap, Deb is sitting quietly and reading her emails. Several letters and a package were here when we got back. Thanks friends!
Tomorrow starts the Dr visit and port installation. Then chemo. So, today might be the best Deb feels for a while.
Blessings all
Vern
Tuesday, June 29, 2010
Tuesday evening
We completed all tests needed before we begin chemo later this week. It was a long day and because of the meds Deb took for the tests, she is wiped out and I just put her to bed at 7:30.
Tomorrow is rest. As of right now we have no scheduled events. If that holds, I may rent a car so we can drive around our area a little. We have not explored Little Rock at all since we've been coming out here. We have had very little down time in our Ark visits.
Blessings all!
Vern
Tomorrow is rest. As of right now we have no scheduled events. If that holds, I may rent a car so we can drive around our area a little. We have not explored Little Rock at all since we've been coming out here. We have had very little down time in our Ark visits.
Blessings all!
Vern
Monday, June 28, 2010
CONTACT INFO (re-post for convenience)
This blog does not allow a normal email address format. Therefore, please add the 'at' symbol for the.
Remember, no spaces in an email address. We check emails multiple times a day when able.
Vern Darley= vern at mindspring.com
Deb Darley= deb.darley at gmail.com
Chief Angel Cassy Sims= cassysims at gmail.com
++++++++++++++++++++
Our temporary address in Little Rock in case you want to send a card to Deb.
Deb Darley
c/o Markham House Suites
5120 West Markham
Little Rock, AR 72205
Remember, no spaces in an email address. We check emails multiple times a day when able.
Vern Darley= vern at mindspring.com
Deb Darley= deb.darley at gmail.com
Chief Angel Cassy Sims= cassysims at gmail.com
++++++++++++++++++++
Our temporary address in Little Rock in case you want to send a card to Deb.
Deb Darley
c/o Markham House Suites
5120 West Markham
Little Rock, AR 72205
PET scan ongoing
It was tough lying on the hip that earlier today had a bone sample and marrow samples removed.
Oh well, nobody said it will be fun!
Next step tonight:feed Deb!
Hospital gift shop item
Sunday, June 27, 2010
Sunday evening
We are mostly unpacked and went to our appointment for labs to get ready for a busy week. We just got a call from the nurse who gave us a script for potassium. It's very low.
We had a visit in the clinic with classmates Patty and Pat Patterson. Patty is having real back problems that Deb's type treatment of cementing the crushed vertebra won't fix.They are looking for solutions.
After the clinic time, we went to Kroger to stock up for the coming days. Deb is probably not going to feel like it later.
So, we hit it hard at 7:30 in the morning.
More later.
Vern
We had a visit in the clinic with classmates Patty and Pat Patterson. Patty is having real back problems that Deb's type treatment of cementing the crushed vertebra won't fix.They are looking for solutions.
After the clinic time, we went to Kroger to stock up for the coming days. Deb is probably not going to feel like it later.
So, we hit it hard at 7:30 in the morning.
More later.
Vern
Getting settled in Arkansas Sun afternooon
We arrived per schedule in North Little Rock at 10 am CT and saw Calvin waiting with the limo and Elmo the line boy ready to fuel Gracie for the return trip. Because of winds and a little wx near Birmingham, we took 2.5 hours to get here today. Smooth all the way at 8000'.
Deb's back is healing so well that she barely needed any help getting aboard Gracie at all. That's a far cry from previous trips which required 3-4 helpers to get her on board.Dave came with us and flew Gracie back to Ga. We saw he just arrived in Peachtree City. There is a website and iPhone app that tracks aircraft on IFR flight plans. You enter the tail number of the plane or other info and it shows where the plane is. It works for airliners, and private planes-see www.flightaware.com
Gracie's N number is N353RV. Friend Walter tracked us here today and called to welcome us to our temporary abode. Thanks Walt!
Walt's daughter is a fireman(firewoman???) in Peachtree City and said we had a big fire at the Windham in Peachtree City last night. We live near there and did not hear a thing.
We are staying in the room that Israel just left-205. It is one floor below the room we had on previous trips-305. The staff says they are fully booked here the rest of the month for patients. Our two stored boxes were brought right up to us.
Deb ate a good lunch and then started a little nap before our 3 pm first stop. We still have to unpack, gets some groceries, and figure out our schedule.
Antoinne was our driver. He has two weeks before he reports to Disney in Orlando. He still does not know what role he will have there in entertainment.
Thanks to all those supporting us. Having a send off team help us load Gracie and pray for us before we take off is so encouraging! Thanks all!
Vern
Deb's back is healing so well that she barely needed any help getting aboard Gracie at all. That's a far cry from previous trips which required 3-4 helpers to get her on board.Dave came with us and flew Gracie back to Ga. We saw he just arrived in Peachtree City. There is a website and iPhone app that tracks aircraft on IFR flight plans. You enter the tail number of the plane or other info and it shows where the plane is. It works for airliners, and private planes-see www.flightaware.com
Gracie's N number is N353RV. Friend Walter tracked us here today and called to welcome us to our temporary abode. Thanks Walt!
Walt's daughter is a fireman(firewoman???) in Peachtree City and said we had a big fire at the Windham in Peachtree City last night. We live near there and did not hear a thing.
We are staying in the room that Israel just left-205. It is one floor below the room we had on previous trips-305. The staff says they are fully booked here the rest of the month for patients. Our two stored boxes were brought right up to us.
Deb ate a good lunch and then started a little nap before our 3 pm first stop. We still have to unpack, gets some groceries, and figure out our schedule.
Antoinne was our driver. He has two weeks before he reports to Disney in Orlando. He still does not know what role he will have there in entertainment.
Thanks to all those supporting us. Having a send off team help us load Gracie and pray for us before we take off is so encouraging! Thanks all!
Vern
Friday, June 25, 2010
Friday evening at home
Deb had a great day. Because she has lost 40+ pounds and lost >2" height, she needed some clothing items before we return to Arkansas Sunday morning. Amanda took her on a short shopping trip and before long, the new duds were in the bag!
We do not know how long we will be gone. A perfect session might about 3 weeks. But, based on how Deb recovers from the stem cell transplant, we might be there longer. We do not know. Have you ever packed for an indefinite trip like this?
We are doing lot's of laundry and gathering of stuff for our departure. Once again we will look like the Beverly Hillbillies as we again stuff Gracie. Dave is riding out with us to bring Gracie home to her own hangar.
Again today the clinic called to confirm more tests.
Regarding the critters: three squirrels have been continuing to stuff their faces with the seeds. Since the seeds are back on a table, the chipmunk is waiting under the table. All are truly stuffed!
One is lying flat on the ground with legs spread out, tongue hanging out! Truly a gluttonous critter! Bet his tummy is swollen.
Deb and I have had a lot of laughs from these show offs. We also saw the hawk circling overhead. Wonder what he's thinking?
Gotta run. Time to change loads.
Blessings,
Vern
We do not know how long we will be gone. A perfect session might about 3 weeks. But, based on how Deb recovers from the stem cell transplant, we might be there longer. We do not know. Have you ever packed for an indefinite trip like this?
We are doing lot's of laundry and gathering of stuff for our departure. Once again we will look like the Beverly Hillbillies as we again stuff Gracie. Dave is riding out with us to bring Gracie home to her own hangar.
Again today the clinic called to confirm more tests.
Regarding the critters: three squirrels have been continuing to stuff their faces with the seeds. Since the seeds are back on a table, the chipmunk is waiting under the table. All are truly stuffed!
One is lying flat on the ground with legs spread out, tongue hanging out! Truly a gluttonous critter! Bet his tummy is swollen.
Deb and I have had a lot of laughs from these show offs. We also saw the hawk circling overhead. Wonder what he's thinking?
Gotta run. Time to change loads.
Blessings,
Vern
Thursday, June 24, 2010
Thursday evening
Deb has had a good day. Her mobility, mental sharpness, and demeanor are great. Friend Lisa left this morning. Amanda and Jon came down for supper. Deb felt good enough for us to all go to our favorite Pizza joint here in Peachtree City where we ran into friends Jo and Al. Deb has been enjoying the few brief outings she has had.
We both are dreading going back into the hospital environment because we know the pain that lies ahead. However, the hope of a future that is cancer-free is motivational.
Amanda is at the beautiful pregnant stage with delivery in a few weeks. Deb is really sad to possibly miss the arrival. We had planned to be returning from a trip to Brussels to see Evelyn about now and then be with Amanda for her delivery. Both plans are changed. But, if we get thru these treatments, then we can be with both grandchildren in the future and get a chance to really spoil them!
I have been in a planning funk for a few days considering what bills must be paid, the weather for the flight back, duties that must be dealt with at work, insurance forms to be filed,etc. There is a lot to do and I prefer a quiet methodical process, not last minute bedlam.
Tonight we had free entertainment in the back yard. Deb had tossed a seed ring for birds into the back yard. An aggressive squirrel got to it first. A hungry chipmunk would approach it. The squirrel kept eating until the chipmunk was close,then he would turn and chase the chipmunk away. This act repeated itself for an hour. Deb finally asked me to chase the bully squirrel away so the chipmunk could eat. Then the squirrel got enough boldness to creep back up to the seed ring. After awhile we heard the screech of the hawk on a nearby limb. Wonder how this food-chain excitement will end?
We'll miss these shows in the coming weeks!
The phone rang a few minutes ago and it was the Ark. hospital confirming tests for next week. Our new apartment is reserved and Gracie is gassed and ready to go. So, Lord willing, off we go in the Sunday morning coolness.
Blessings all!
Vern
We both are dreading going back into the hospital environment because we know the pain that lies ahead. However, the hope of a future that is cancer-free is motivational.
Amanda is at the beautiful pregnant stage with delivery in a few weeks. Deb is really sad to possibly miss the arrival. We had planned to be returning from a trip to Brussels to see Evelyn about now and then be with Amanda for her delivery. Both plans are changed. But, if we get thru these treatments, then we can be with both grandchildren in the future and get a chance to really spoil them!
I have been in a planning funk for a few days considering what bills must be paid, the weather for the flight back, duties that must be dealt with at work, insurance forms to be filed,etc. There is a lot to do and I prefer a quiet methodical process, not last minute bedlam.
Tonight we had free entertainment in the back yard. Deb had tossed a seed ring for birds into the back yard. An aggressive squirrel got to it first. A hungry chipmunk would approach it. The squirrel kept eating until the chipmunk was close,then he would turn and chase the chipmunk away. This act repeated itself for an hour. Deb finally asked me to chase the bully squirrel away so the chipmunk could eat. Then the squirrel got enough boldness to creep back up to the seed ring. After awhile we heard the screech of the hawk on a nearby limb. Wonder how this food-chain excitement will end?
We'll miss these shows in the coming weeks!
The phone rang a few minutes ago and it was the Ark. hospital confirming tests for next week. Our new apartment is reserved and Gracie is gassed and ready to go. So, Lord willing, off we go in the Sunday morning coolness.
Blessings all!
Vern
Wednesday, June 23, 2010
Gifts from 2 & 4 yr old Needle girls
Thanks girls!You did such a wonderful job making these colorful gifts for me. I put them with my happy things. Thanks! Deb
Tuesday, June 22, 2010
Church Elders anoint Deb with oil and pray for her
In accordance with the command found in the book of James, Deb asked the church elders to pray for her. We had a sweet visit and enjoyed our time together. It is so encouraging to have the support of our church family.
Monday, June 21, 2010
Monday am-High Anxiety
Deb stretched herself yesterday and paid for it evening, night, and this morning.All last week we saw a 'miracle week' as Deb regained strength and abilities. As we have begun preparing to return to Arkansas next weekend, Deb has become fretful and having anxiety attacks. This morning, in her best Tennessee vernacular, 'she ain't worth killin'.
Knowing what procedures are ahead of her, and having had the unexpected 11 days in the hospital has left her in high anxiety that it may happen again.
The medical staff has seen this before and given meds to calm patients who all face these issues, but for some reason this anxiety is worse than normal.
Last night she tried sleeping in our bed, the chair, and the hospital bed. She wandered about the house and circled aimlessly.
We have called a number of prayer warriors and ask for your prayers also.
We are seeing our Dr before lunch today.
Please pray. I've not seen Deb like this before.
Vern
Knowing what procedures are ahead of her, and having had the unexpected 11 days in the hospital has left her in high anxiety that it may happen again.
The medical staff has seen this before and given meds to calm patients who all face these issues, but for some reason this anxiety is worse than normal.
Last night she tried sleeping in our bed, the chair, and the hospital bed. She wandered about the house and circled aimlessly.
We have called a number of prayer warriors and ask for your prayers also.
We are seeing our Dr before lunch today.
Please pray. I've not seen Deb like this before.
Vern
Sunday, June 20, 2010
Fathers on Father's day
Sunday Deb was able to take a short field trip to my parents home in Morrow, Ga. We met my sister Kay and her husband Lee who had driven up from Warner Robins to join us for lunch and to wish dad a happy Father's day. Dad turned 85 on May 29, 2010.
Vern
Saturday, June 19, 2010
Miracle week-Saturday afternoon
Deb is asleep in her electric recliner after a short trip with me mid-morning. Before sunrise, I ran out to the hangar for some much desired sunrise-flying, leaving her snoozing. I really enjoyed seeing the sun come up and watching the fog over the lakes and rivers; people starting their days.
I had committed a terrible mistake by not filling a pain med prescription on Thursday as planned and when the pharmacy opened, had to make amends. I cut it too close! It's a bad deal to make a mistake that hurts someone else!
Deb wanted to ride in the car with me, so off we went. By the time we got back she was ready for a nap. The at-home chemo-thialomide- has kicked in and the energy she had at the beginning of the week has waned. That chemo is the same drug that left many deformed babies in the '50-60's. Used by pregnant women, it had horrible effects on babies. Used by cancer patients, it has horrible effects on cancer cells!
This has been a hopeful-miracle-week.
>Deb slept in her bed flat-like everyone else- all week
>Deb started easing around the house slowly without her walker
>The sleep talk has eased
>Deb has been alert and able to do more for herself
We see the healing going on and are so happy to be here in our home. There are simple joys watching the birds and squirrels, looking at your yard, seeing the trees swaying in the breeze,etc.
Quiet peaceful refuge. Familiar surrounds.Home!
We are so greatful!
Vern
I had committed a terrible mistake by not filling a pain med prescription on Thursday as planned and when the pharmacy opened, had to make amends. I cut it too close! It's a bad deal to make a mistake that hurts someone else!
Deb wanted to ride in the car with me, so off we went. By the time we got back she was ready for a nap. The at-home chemo-thialomide- has kicked in and the energy she had at the beginning of the week has waned. That chemo is the same drug that left many deformed babies in the '50-60's. Used by pregnant women, it had horrible effects on babies. Used by cancer patients, it has horrible effects on cancer cells!
This has been a hopeful-miracle-week.
>Deb slept in her bed flat-like everyone else- all week
>Deb started easing around the house slowly without her walker
>The sleep talk has eased
>Deb has been alert and able to do more for herself
We see the healing going on and are so happy to be here in our home. There are simple joys watching the birds and squirrels, looking at your yard, seeing the trees swaying in the breeze,etc.
Quiet peaceful refuge. Familiar surrounds.Home!
We are so greatful!
Vern
Friday, June 18, 2010
Thursday, June 17, 2010
Thursday morning
At our local Dr getting labs. Next is the hospital for more. Then Deb
home and Vern to work.
home and Vern to work.
Deb had a very restful night which has the added benefit of Vern
having one too!
Ten days until we return to Ark
Deb is beginning to feel the effects of the chemo she is taking at home.
Vern
Sent from my iPhone
Wednesday, June 16, 2010
Weds am
We have been enjoying the quietness and peacefulness of home these few days. Monday, Amanda took Deb to the Dr and the local hospital for the required blood tests that must be forwarded back to Little Rock. Tuesday, son Stephen came down from Atlanta for a few days visit. Deb's brother Tim drove Deb's mom Doris up from Warner Robins for a visit.
Last night was national sort-out-the-weekly-pills night for Vern.
Deb continues to strengthen and her mental clarity is returning. The chemo pills we started Mon night are making her sleepy. Her appetite has returned, aided no-doubt by the wonderful meals some are providing:otherwise, her plate would contain Vern's creations which she's had enough of for a while.
Vern's been back at work.
The loving and kind response of fellow associates and friends continues to be overwhelming to us.Thanks everyone!
Our yard was dressed up by some yard angels while we were absent and has never looked better to us. Thanks all you yard angels!
With that improvement, the yard has attracted several new residents who have enjoyed the solitude of no humans for a month. A family of opossums is seen in the wild area. Two medium sized hawks have also been our joy. They sit and watch us watching them: Kissinger would have described it as 'Peaceful co-existence'.
Thursday brings more medical tests.
Blessings all!
Vern
Last night was national sort-out-the-weekly-pills night for Vern.
Deb continues to strengthen and her mental clarity is returning. The chemo pills we started Mon night are making her sleepy. Her appetite has returned, aided no-doubt by the wonderful meals some are providing:otherwise, her plate would contain Vern's creations which she's had enough of for a while.
Vern's been back at work.
The loving and kind response of fellow associates and friends continues to be overwhelming to us.Thanks everyone!
Our yard was dressed up by some yard angels while we were absent and has never looked better to us. Thanks all you yard angels!
With that improvement, the yard has attracted several new residents who have enjoyed the solitude of no humans for a month. A family of opossums is seen in the wild area. Two medium sized hawks have also been our joy. They sit and watch us watching them: Kissinger would have described it as 'Peaceful co-existence'.
Thursday brings more medical tests.
Blessings all!
Vern
Sunday, June 13, 2010
Sunday morning
Two big events: first shower and first time in church in months! Bet you didn't appreciate your's as much as Deb did!
Deb is still very weak and was concerned about going to church. I parked at the front door and we sat at the back. A number of folks saw me and asked about how Deb was. I would point at her and suddenly they would realize that was her in her orange as-yet-un-named blingy hat. The Lord blessed us with four special blessings+ :
1-A guest musician from Chicago sang a praise song about how faithful our God is to care for us: we were punching one another with each verse because the singer was describing how God had cared for each of our needs so perfectly! We could truly enter into the worship!
2-The message today was from the middle chapter of Acts (15,16,17)and described how Paul, and others learned that our plans sometimes do not work out as we want or think they should because the Lord has another better plan. Christians must be flexible if they truly follow Jesus. Often times we will not understand why things are harder, less successful, under opposition,etc. That's all part of molding and shaping us into the image of Jesus. It's having the mind of Christ!
3-The standing ovation welcome everyone gave us! Deb just did not have the strength to personally greet each one of our friends.
4-The church has a shared garden space on some of the back property. As we were getting into the car to leave, friends gave us a large bag of veggies which are to be our lunch and supper today! I'm working hard to feed Deb fresh organic as much as we can.
Blessings all!
Vern
Deb is still very weak and was concerned about going to church. I parked at the front door and we sat at the back. A number of folks saw me and asked about how Deb was. I would point at her and suddenly they would realize that was her in her orange as-yet-un-named blingy hat. The Lord blessed us with four special blessings+ :
1-A guest musician from Chicago sang a praise song about how faithful our God is to care for us: we were punching one another with each verse because the singer was describing how God had cared for each of our needs so perfectly! We could truly enter into the worship!
2-The message today was from the middle chapter of Acts (15,16,17)and described how Paul, and others learned that our plans sometimes do not work out as we want or think they should because the Lord has another better plan. Christians must be flexible if they truly follow Jesus. Often times we will not understand why things are harder, less successful, under opposition,etc. That's all part of molding and shaping us into the image of Jesus. It's having the mind of Christ!
3-The standing ovation welcome everyone gave us! Deb just did not have the strength to personally greet each one of our friends.
4-The church has a shared garden space on some of the back property. As we were getting into the car to leave, friends gave us a large bag of veggies which are to be our lunch and supper today! I'm working hard to feed Deb fresh organic as much as we can.
Blessings all!
Vern
Saturday, June 12, 2010
Saturday evening
It's been a quiet peaceful day in our quiet home. After spending a month in a small one- bedroom place we feel like our house is a huge castle. FOUR burners on the stove AND an oven! Counter space galore!
Deb slept again in our bed last night without the 3'x3'x12" angled pillow. FLAT! First time in many months.It seems that the back repairs are healing and Deb is much more comfy. She has been motivating around the house. She is still very tired and we have to remember the prescription-REST.
Amanda spent several hours here and has a July 19th due date. Guess where Deb and I will be July 19th?
While I ran errands Amanda and Deb had a Skype video conference with Evelyn, Katka, and Trey.
Blessings!
Vern
Deb slept again in our bed last night without the 3'x3'x12" angled pillow. FLAT! First time in many months.It seems that the back repairs are healing and Deb is much more comfy. She has been motivating around the house. She is still very tired and we have to remember the prescription-REST.
Amanda spent several hours here and has a July 19th due date. Guess where Deb and I will be July 19th?
While I ran errands Amanda and Deb had a Skype video conference with Evelyn, Katka, and Trey.
Blessings!
Vern
Friday, June 11, 2010
Friday at home
It's been a restful day for Deb. That is the prescription for the next two weeks. Last night was the first night since about Feb that Deb slept in her own bed. She's slept in three different recliners and a hospital bed until last night. The six back repairs have certainly helped and she is much more mobile than before Arkansas. Do not get in the way of that walker or you will get run over!
Work has been non-stop for me since we got home. Mountains of mail, arranging with our local Doctor for the 3 tests per week that he will send to Arkansas, etc. Lots of to-do's!
I go back to work Monday and Amanda and friends will be helping Deb. We couldn't make it without everyone's help! Thanks!
Until we go back to Arkansas, I suspect these updates will become more routine and perhaps even more boring. The action will definitely pick up in two weeks because we will be having the first of two stem cell transplants and chemo,etc.
Thanks for hanging in there with us!
This message was approved by Deb!
Vern
Work has been non-stop for me since we got home. Mountains of mail, arranging with our local Doctor for the 3 tests per week that he will send to Arkansas, etc. Lots of to-do's!
I go back to work Monday and Amanda and friends will be helping Deb. We couldn't make it without everyone's help! Thanks!
Until we go back to Arkansas, I suspect these updates will become more routine and perhaps even more boring. The action will definitely pick up in two weeks because we will be having the first of two stem cell transplants and chemo,etc.
Thanks for hanging in there with us!
This message was approved by Deb!
Vern
Thursday, June 10, 2010
At home! PTL !!!!!!!!!!!!!
Tired but happy!
Sent from my iPhone
When Gracie taxied in to the hangar, we had a contingent of friends to help us unpack and greet us. Thanks to all who helped. Can't imagine being in a lone-ranger mindset, but many folks are that private. I always thought I was until Myeloma happened!
Amanda drove us home. We stopped at Partners Pizza for our lunch. It sure is good to be here!
I've unpacked and sorted umpteen loads of laundry. Picked up a load of mail.Went to the pharmacy. Talked to our chemo supplier. Talked to the Clinic Scheduler and agreed to be back in Ark a day early because we have to start treatments a day earlier to get everything in correct sequence and availability. Hate to loose a day at home but that's what we must do.
I would have never dreamed that we are so cared for by everyone! Thanks for helping us along the way!
The Doctors assignment was for Deb to REST in preparation for the next phase of treatment. So, short calls/visits please.
We came back with tests which we must get done and send back to the Myeloma Clinic. So, even though we are at home, they are monitoring us. If something does not look right, they will call us back. Pray that does not happen.
Blessings all!
Vern
Wednesday, June 9, 2010
The Big Picture for June-July 2010
Today was our 'short day.' Those are always deceptive and end up making us so weary!
So, we went for labs and they were overwhelmed, so we went to a 1 pm Dr Nair appt which started at 2:30. He removed some bandages and sent us back to the chemo lab to have the remaining port removed. Because Dr Nair cleared us to go home for about 2 weeks, we had to meet with a nurse to understand which labs we have to get at home and how to handle them.We had to do applications for some powerful meds we will use in the future,then met with the master scheduler to lay out our treatment plan. Then we found out that Dr Nair never sees patients on Weds., but came in just so we could go home.
So, we have a raft of paperwork and a dizzying to do list.
The plan as of now:
June 27-return to Little Rock
June 28,29-xrays,tests, bone marrows,PET scans, MRI's,blood tests,etc
July 1-Dr Nair 1:30pm
-install port in neck for chemo
July 2 thru 6th-chemo
July 7-Stem Cell Transplant
next 1-2 weeks-labs and monitoring transplant
Then home for 3-5 weeks
Return and repeat for second and last stem cell transplant
Vern
So, we went for labs and they were overwhelmed, so we went to a 1 pm Dr Nair appt which started at 2:30. He removed some bandages and sent us back to the chemo lab to have the remaining port removed. Because Dr Nair cleared us to go home for about 2 weeks, we had to meet with a nurse to understand which labs we have to get at home and how to handle them.We had to do applications for some powerful meds we will use in the future,then met with the master scheduler to lay out our treatment plan. Then we found out that Dr Nair never sees patients on Weds., but came in just so we could go home.
So, we have a raft of paperwork and a dizzying to do list.
The plan as of now:
June 27-return to Little Rock
June 28,29-xrays,tests, bone marrows,PET scans, MRI's,blood tests,etc
July 1-Dr Nair 1:30pm
-install port in neck for chemo
July 2 thru 6th-chemo
July 7-Stem Cell Transplant
next 1-2 weeks-labs and monitoring transplant
Then home for 3-5 weeks
Return and repeat for second and last stem cell transplant
Vern
Homecoming plan for Thursday
Lv Markham House 8:30 CT Thursday
N Little Rock Airport 9am
Load Gracie and Takeoff about 9:30CT
Enroute 2:15-2:30 depending on weather and winds aloft
Arrive PTC 12:45-1 est
N Little Rock Airport 9am
Load Gracie and Takeoff about 9:30CT
Enroute 2:15-2:30 depending on weather and winds aloft
Arrive PTC 12:45-1 est
Sent from my iPhone
Weds noon
In the waiting room for blood tests and port removal. Dr Nair appt at
1 pm to find out if we can come home.
1 pm to find out if we can come home.
Just chatted with Israel and son Jacob. They are in more testing.
Deb slept all night at the apt. No one awakened her in the middle of
the night like in the hospital;least of all me!
She is weak but doing well.
Update to follow when we get the word on home or not.
Vern
Sent from my iPhone
Tuesday, June 8, 2010
Tuesday noon
Still waiting to be released from inpatient hospital to outpatient. Dr
is doing paperwork now. Suppose we will go back to apt this afternoon.
Have noon appointment Weds at cancer clinic, then 1 pm Dr Nair. If
that goes well, perhaps come home thursday.
All subject to wx, etc
is doing paperwork now. Suppose we will go back to apt this afternoon.
Have noon appointment Weds at cancer clinic, then 1 pm Dr Nair. If
that goes well, perhaps come home thursday.
All subject to wx, etc
Vern
Sent from my iPhone
Tuesday-dressed,packed,raring to go!
Deb has been 'in reality' for several days wanting to understand how
she got here, details,etc. Her awaking question to me was 'did she
really have cancer, or was it all a dream?'
Monday, June 7, 2010
Monday noon report
The Dr just left and said that Deb had collected 25.5 million stem
cells and if she is ok tomorrow, she will dismiss her from the
hospital. Then we get an appointment with Dr Nair and if he is happy,
we come home for a few weeks. Sounds great to us!
Vern
cells and if she is ok tomorrow, she will dismiss her from the
hospital. Then we get an appointment with Dr Nair and if he is happy,
we come home for a few weeks. Sounds great to us!
Vern
Sent from my iPhone
Monday am
Deb seems to have come alive and is now aware she has been very sick.
Until today she thought we had only been here three days. Today she
asked how she got here, why, and what happened. She is certainly doing
better today!
Vern
Until today she thought we had only been here three days. Today she
asked how she got here, why, and what happened. She is certainly doing
better today!
Vern
Sent from my iPhone
Sunday, June 6, 2010
Practicing
can go home. She is still very weak but her determination is strong.
Sunday noon
It's been a quiet day in Little Rock. Nothing much quieter than a hospital on a weekend.
Dr Nair just left. He is beginning to prepare us for departure. Several drips were changed back to pill form. He said Deb must have 2 more days of one strong anti biotic before he can do a final exam and release her.He said we should be home late in the week, which will not be soon enough!
Her lower lungs still need about two more weeks to be healed up.
Deb and I took a long walk around the hall using her walker. It tired her out and she is down for a nap.
It will be good to be back home!
Vern
Dr Nair just left. He is beginning to prepare us for departure. Several drips were changed back to pill form. He said Deb must have 2 more days of one strong anti biotic before he can do a final exam and release her.He said we should be home late in the week, which will not be soon enough!
Her lower lungs still need about two more weeks to be healed up.
Deb and I took a long walk around the hall using her walker. It tired her out and she is down for a nap.
It will be good to be back home!
Vern
Saturday, June 5, 2010
Dr Nair visits in the hospital
Based on the latest lab results, 90 percent of cancer cells have been killed.PTL!!!!!!!!
Two issues to resolve prior to hospital release:
1-breathing and pneumonia remnants in lower right lung lobe
2-stabilizing heart
Both are improving. A new heart med is helping heart.Continuing meds, and lung exercises,and rehab are helping 2
So, the plan seems to be early next week release from hospital.Home for 2-3 weeks, return for repeat.
Para influenza and a bacterial infection were the cause of the pneumonia
There will be a total of five rounds of chemo before we are graduates of the program.
Although Deb has had significant weight loss, we would recommend Jenny Craig over chemo.
Vern
Daria visits from Georgia
Vern' s first cousin Daria visited from Georgia.She and husband Bruce Hargis are in Branson for a family reunion and since she was in the neighborhood,decided to drop by. (. 3.5 hours each way)
Years ago Vern and Deb visited Daria in Oklahoma City when she was in the FAA controllers school.
Vern
Sat am
hotel and got a shave and shower.
Israel's other son Jacob came down from Jersey for a few days. Israel
collected 5 days and got about 14 million stem cells. He is wiped out.
We are waiting on the Dr to make rounds to find out our next step.
Hope he prescribes some Georgia on our minds!
Vern
Friday, June 4, 2010
Friday evening
The cardiologist just left and thinks Deb is just reacting to the abuse from chemo and meds. He is adjusting some meds and asked her to sit up and see how her blood pressure and heart react. He talked as if she would be able to be released to the cancer clinic if she does well.Then,if they are happy, perhaps we can think about heading home soon.
Vern
Vern
Friday afternoon update
The room has been a three ring circus most of the day. Finishing a transfusion now and then an angiogram ?? I think they said .Deb was craving peanuts so I chased some down. She is now restricted to the bed so no strolls down the hall until they sort out this heart deal.
So- for my lunch I explored the facility a little after leaving my cell number with the nurse.
I ate lunch in a remote spot and had catfish,turnip greens, black eyed peas and hush puppies. Sure beat the funky sandwiches downstairs made on slices of jalopena cornbread instead of regular bread.
Tables were scarce so I shared a table for lunch with an older gentleman who was a WWII navy vet.He served on the light cruiser USS Savannah. He was in the engine room. He got hit by a German torpedo near Italy and almost sunk.After VE day, they took the un needed combat arms sailors home to the US and made about ten round trips ferrying GIs back to the states. He said they later sailed into the city of Savannah where the citizens thru a street party for the ships company.
http://en.wikipedia.org/wiki/USS_Savannah_(CL-42)
Since the war he has been a rice farmer in S Arkansas. His son has taken over the family farm now.
Then I walked across the street to the medical school bookstore.I couldn't find anything on my reading level, so I came back to the room to be with Deb.
Note echo in progress
There are some smart cookies in medicine! As I people- watch here, I obverve a lot of fairly simple folk coming for treatment. It is so amazing how the very sharp and caring medical staff serves them.What a blessing that the capable serve the needy in this economy.
We had a Canadian nurse. She said that in Toronto where she was when socialized medicine became the law, they closed numerous hospitals in an attempt to not allow people into hospitals that did not need to be there.
Deb is napping now and having one of her strange conversations.
Hope you have a great weekend. You know where we will be!
Vern
So- for my lunch I explored the facility a little after leaving my cell number with the nurse.
I ate lunch in a remote spot and had catfish,turnip greens, black eyed peas and hush puppies. Sure beat the funky sandwiches downstairs made on slices of jalopena cornbread instead of regular bread.
Tables were scarce so I shared a table for lunch with an older gentleman who was a WWII navy vet.He served on the light cruiser USS Savannah. He was in the engine room. He got hit by a German torpedo near Italy and almost sunk.After VE day, they took the un needed combat arms sailors home to the US and made about ten round trips ferrying GIs back to the states. He said they later sailed into the city of Savannah where the citizens thru a street party for the ships company.
http://en.wikipedia.org/wiki/USS_Savannah_(CL-42)
Since the war he has been a rice farmer in S Arkansas. His son has taken over the family farm now.
Then I walked across the street to the medical school bookstore.I couldn't find anything on my reading level, so I came back to the room to be with Deb.
Note echo in progress
There are some smart cookies in medicine! As I people- watch here, I obverve a lot of fairly simple folk coming for treatment. It is so amazing how the very sharp and caring medical staff serves them.What a blessing that the capable serve the needy in this economy.
We had a Canadian nurse. She said that in Toronto where she was when socialized medicine became the law, they closed numerous hospitals in an attempt to not allow people into hospitals that did not need to be there.
Deb is napping now and having one of her strange conversations.
Hope you have a great weekend. You know where we will be!
Vern
Friday morning-heart troubles
Deb has been wearing a wireless heart monitor for a week or so. Periodically she has been setting off alarms in the heart monitoring center.When that happens, a rapid response team runs in.right now they are back.There is an EKG running now. A Dr just responded also. So, what is happening ????
Mystery, but it must be resolved before we can leave.
Deb has also been unusually aggitated for no apparent reason.
Her cancer treatments are on track. Now we need her other functions to cooperate.
Standy by for updates.
Vern
++++++++++++++++
Update 1
Dr says EKG is ok. Suspects that collection has greatly stimulated blood cell production which may be causing troubles.
Deb is being restricted to the bed and no walking until the heart settles down. Three steps fwd, two backwards.
Cardio doc coming to look at her.
Portable chest xray has been ordered.
Exam underway.
Mystery, but it must be resolved before we can leave.
Deb has also been unusually aggitated for no apparent reason.
Her cancer treatments are on track. Now we need her other functions to cooperate.
Standy by for updates.
Vern
++++++++++++++++
Update 1
Dr says EKG is ok. Suspects that collection has greatly stimulated blood cell production which may be causing troubles.
Deb is being restricted to the bed and no walking until the heart settles down. Three steps fwd, two backwards.
Cardio doc coming to look at her.
Portable chest xray has been ordered.
Exam underway.
Thursday, June 3, 2010
Stone used in Little Rock
Vern
Hospitalist Dr visit
The Dr just left after telling us that although Deb is doing great, her pneumonia battle will most likely keep us here until sometime next week. We are disappointed because we were mentally packing our bags, but realistically, Deb is extremely weak and cannot stand without a helper beside her. The Dr mentioned that a few days ago they were concerned that she would not be able to collect and she was able.
So, we are very happy at her progress, but will be sooooo glad to be home for a while.
Enjoy your circumstances: they can turn on a dime!
Vern
So, we are very happy at her progress, but will be sooooo glad to be home for a while.
Enjoy your circumstances: they can turn on a dime!
Vern
Back in the room
Stem cells collected,back in the room, now waiting for the hospitalist dr to sign off on the heart and pneumonia.Then we can get the plan from Dr Nair for a return to Ga to get a break....much needed!
Deb is very tired and we are so grateful to have passed a huge milestone in this battle.
Vern
Deb is very tired and we are so grateful to have passed a huge milestone in this battle.
Vern
Alert: Starting second stem cell now!
Got 13.4 million yesterday! 20 million total enough for multiple
transplants
transplants
Vern
Sent from my iPhone
Wednesday, June 2, 2010
Arrhythmia !
An irregular heartbeat is an arrhythmia. Deb's got one to add to her trophy case.
As I said before, classmate Bubba was visiting and telling about the woes of Deb's classmate bud Ima when the transport arrived to take us down for collection. Deb has so much compassion for others, I think it upset her more than I realized.
Deb has been wearing a heart monitor for several days while fighting the pneumonia. It is a remote unit that sends the signal back to a monitoring station in the hospital.
When we got back to the room from collecting, Deb was growing increasingly agitated for no apparent reason. A few things I did to help resettle her back into the room seemed to really set her off. Suddenly three nurses came flying into the room and wanted her to lie down because the heart monitor had reported arrhythmia.They confirmed it with another electronic unit.
Now,several weeks ago a previously unknown murmur had been found. Otherwise,Deb has never had any heart troubles.
Anyway, they wanted Deb in the bed resting for the day. So,I have headed out for the Markham house for a much needed shower,nap, and change of clothes while Deb gets a relaxer pill and rests without my rowdiness for awhile. After supper I'll head back over for another night on the lumpy couch.
When I left, we were scheduled for the other stem cell collection first thing in the am.
I was very fascinated with the machine that was pulling the stem cell collection from Deb's cath. It circulated all her blood 2-3 times thru the unit, and put back what it did not need. It deposited the thick red stem cell material-about a half-cup to my eye-into a blood bag to be sent to the lab for withdrawal and freezing.
We saw Israel. He looked bad today as he came in for a collection. He could hardly walk.
It's an adventure! Thanks for sharing it with us.
Hope to have a better report soon. As usual, you loyal followers will be the first to know.
Vern
As I said before, classmate Bubba was visiting and telling about the woes of Deb's classmate bud Ima when the transport arrived to take us down for collection. Deb has so much compassion for others, I think it upset her more than I realized.
Deb has been wearing a heart monitor for several days while fighting the pneumonia. It is a remote unit that sends the signal back to a monitoring station in the hospital.
When we got back to the room from collecting, Deb was growing increasingly agitated for no apparent reason. A few things I did to help resettle her back into the room seemed to really set her off. Suddenly three nurses came flying into the room and wanted her to lie down because the heart monitor had reported arrhythmia.They confirmed it with another electronic unit.
Now,several weeks ago a previously unknown murmur had been found. Otherwise,Deb has never had any heart troubles.
Anyway, they wanted Deb in the bed resting for the day. So,I have headed out for the Markham house for a much needed shower,nap, and change of clothes while Deb gets a relaxer pill and rests without my rowdiness for awhile. After supper I'll head back over for another night on the lumpy couch.
When I left, we were scheduled for the other stem cell collection first thing in the am.
I was very fascinated with the machine that was pulling the stem cell collection from Deb's cath. It circulated all her blood 2-3 times thru the unit, and put back what it did not need. It deposited the thick red stem cell material-about a half-cup to my eye-into a blood bag to be sent to the lab for withdrawal and freezing.
We saw Israel. He looked bad today as he came in for a collection. He could hardly walk.
It's an adventure! Thanks for sharing it with us.
Hope to have a better report soon. As usual, you loyal followers will be the first to know.
Vern
Collecting stem cells now!
The nurse said Deb's blood numbers are really good. We will collect for 90 minutes today and again tomorrow.
We are so happy! This is the day we have worked so hard to get to.
Before we came down for this,classmate Iva's husband Bubba had been with us visiting in our room.Iva has been getting the run-around,fell and hurt herself, and has had Dr changes. Pray for Iva. She is so discouraged. They are from Mississippi.
'
Deb-Today's The Day We Start!!!!!!!!
It's almost noon on Wednesday. I have been told that I am next in line. I still have pneumonia but the treatments can run concurrently. Thank you for the countless times you have prayed for me. The Holy Spirit has allowed me to the warmth of your prayers and filled me with hope and gratitude. I am waiting for the call.
Mention of two draws were made depending on my condition and appointment.
Thank you,
Deb
Mention of two draws were made depending on my condition and appointment.
Thank you,
Deb
Tuesday, June 1, 2010
Resting after a long walk
doing better but is still very fragile.
The previous picture of me was Deb's retaliation for all the pix i
shot of her.
Vern
New port in, back in hospital room
Stem cell collection schedule unknown.we are ready.
Sent from my iPhone
Alert: going to get new port installed
Possible stem cell collection this afternoon or tomorrow
Sent from my iPhone
The actual breakfast
bread jelly ham sandwich
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