Thursday, March 24, 2011

Dr Nair Gives Test Results


We signed in for our appointment with Dr Nair.
Looking around, we found our Thai friends waiting for their appointment. The grand daughter has been a faithful caregiver.


Soon Gina, Dr Nair's nurse, brought us back and did a review of meds and records. Then Dr Nair showed up and got his Deb hug. Then he gave us his big news...after six years of marriage, a baby daughter is due in May! We encouraged him to sleep now while he can!

He read all the reports from the tests and told us that Deb is still in remission. He made a few small changes and told us to come back in June.
We always record our questions and answers in a notebook so we do not forget in our excitement.

The MRI report was especially revealing to us. It showed that there has been a lot of healing of lesions that were there for the 12/6/10 MRI and now no longer visible. Those lesions still present coincided with places where Deb experiences pain.

Our day



There is a small gift shop in the lobby of the cancer center. Deb always enjoys a quick spin thru it to see what's new. Here are a few shots.

Photo of photographers


Today we met UAMS staff photographers/writers who were doing a photo shoot of Deb and me for some articles. Since it was about this blog and its impact on others, it was only fitting that we include them!

We had fun with pros setting up equipment right there in the waiting area of the infusion center.

Samples of their work coming. Stand by for viewing.

Tuesday, March 22, 2011

Class reunion and test day



This huge stone wall in the foyer of the cancer center is typical Arkansas stone used for homes, walls, and other structures around central Arkansas. Deb and I love it's look! When we see it, we think Arkansas!

Today was Deb's big test day. She started at 07:30 and ended about 5:30pm. Her bone marrow test was especially painful for her today. That pain set the tone for the rest of her day. As a reward,we had planned to go out to her favorite restaurant tonight. By the time the day was over she only wanted to go back to the room. I ran out and got a takeout meal for her.

Classmates Don and Anita are upstairs in our old room. Don is at his low point. I volunteered to bring them supper also but someone beat me to it. We are like family out here!

As I was walking thru the waiting area of the infusion center, a gray-haired lady that looked familiar called out to me. I went over to her and she asked about Deb and me. I still couldn't recognize her until she told me she was Carol from Kentucky. The last time I saw Carol, she was wearing a doo-rag on her bald head and going home to check on her heirloom tomatoes. This wavy beautiful hair couldn't be Carol, could it? It was! She said her hair had always been straight but it had come back in with a big curly wave and absolutely beautiful!

Carol had been in remission for about six months and had been coming for quarterly checkups. She had been clean until recently when her myeloma came back suddenly and worse than originally diagnosed. She is considering a special treatment that has been designed for such situations-called 'Killer-Cell' therapy. She was so happy to talk to me and get an update on Deb.

We needed a pain killer refill and Carla the pharmacist here worked hard to get it approved by the insurance company. Her oldest and now middle sons have earned Eagle Scout. Congrats!

Of course, you can't get powerful painkillers without a prescription which Dr Nair's nurse Gina got signed for us. Gina is the person with the HS tattoo on her wrist I pictured last year. Thanks Gina!

Catching the Markham house van mid-day, staff member Julie came walking up with her rescued greyhound. All the staff and other classmates came out to meet the dog. Julie used to be a Delta Flight Attendant.

Deb was in the MRI from 2:30 until after 5 pm. It was so hard for her to remain still while lying on her bone-marrow site. But, with her usual great attitude, she endured!

Back home Deb has not spent much time in the kitchen but wanted to bake her world famous cookies as gifts for the hotel and infusion staff here. So, she did! Today we passed them out. Yummy!

Deb is crashing tonight. We see Dr Nair Thursday to get test results and find out our next steps.

Our classmate Harold lost his wife Gwen back around Christmas. Today we exchanged texts. He is lonely but doing OK.

Blessings all!

Monday, March 21, 2011

Safely back in Little Rock




We left Georgia about 11 am and bucked a 42 knot headwind. It took 2:45 to get here. Deb was able to get into Gracie almost unaided. What a change since last April when it took about 8 of us to ease her into Gracie! Seven fractured vertabrae will do that to you!

Several friends saw us off from the airport and when we landed at North Little Rock Airport we were greeted by the lineman and other staff we have grown to know here. After gassing up Gracie and retrieving our rental car, we stopped off for a late lunch, then on to the Markham House. Deb had mail waiting on her! Thanks friends! The staff here was all amazed at how well Deb is doing.

We went to a local grocery and picked up supper and snacks for the week. Deb is in good spirits and we are retiring early tonight to be rested for the full day of tests tomorrow.

Sunday, March 20, 2011

Preparing to return to Arkansas

Today was a busy day physically and emotionally as we head back to UAMS in the morning for a week of tests and meeting with Dr. Nair. Deb and I are optimistic about the tests, but we are prepared for whatever surprises await us.

This afternoon we Skyped with Trey, Katka, and Evelyn. Here she is in her garden.

 We had to drop the dog (Oscar) at Amanda's for safe keeping, then dropped in on Vern's parents in Morrow. The home to laundry being done, clothing assembled, meds counted out , mail dealt with, Gracie fueled, weather checked.

We hope to takeoff about 10 am ET for the 2:30 hr trip to North Little Rock, Ark, (KORK) . You can follow our progress on www.FlightAware.com   The N number is N353RV.

More when we arrive back at the Markham House tomorrow.

Friday, March 18, 2011

St Patrick's Day supper


Last evening we had perfect weather. Deb had rested all day so she could go with me to the Falcon RV Squadron St Patrick's day supper at a local restaurant. She enjoyed the supper and good company.

Wednesday, March 16, 2011

Birthday celebration continues


Son Stephen came down from Atlanta to cook supper for Deb. He cooked pork chops, fresh baked beets, and a cabbage caboso. For dessert he gave Deb a gourmet cake slice. Handily, Vern enjoyed the same menu even though it's not my birthday.

We continue to celebrate Deb's company.

Tuesday, March 15, 2011

Birthday events




Deb has had a quiet day at home in the sun room. Friends Cathy and Ginny started Deb's day out with an early morning breakfast visit. Deb got her desired b-day gift of a digital caliper for her jewelry making hobby from Vern.

For supper, Vern cooked her a tender steak and potato. Deb said it was good. Oscar cleaned up the scraps.

After supper, friends Frank and Gayle came by for a visit. Oscar and Frank enjoyed tussling over a toy fox.

Happy Birthday Deb!

Happy Birthday Deb!

Sunday, March 13, 2011

Saturday baby sitting

We stayed overnight with Jon and Amanda and kept watch on Eliana while parents enjoyed an evening together. This morning Eliana was a delightfully happy baby as she awakened in our company. Jon and Vern did a few honey-do's including installing a child gate on the second floor landing because she will be crawling and walking soon. Deb and Amanda enjoyed mommie duties together. Deb was so happy to be able to be with Eliana. She wishes there was some way to be with Evelyn also. Maybe someday!

This afternoon after our customary nap, Deb had a few herbs she wanted to pot, so we spent a few minutes re-potting. Deb is so in love with flowers and plants,she talks to them!

Deb's birthday is Tuesday and she's grateful to be here for another one.

This is a no-chemo week and we are preparing to head to Arkansas next week for evaluation and testing.It will be busy!

Pray for good weather so we will have a timely and uneventful flight in Gracie.

Blessings all!

Tuesday, March 8, 2011

TV Commercial results: _

Tears! There is a commercial on TV that a cancer group uses to say that they are working hard to give people more birthdays. When Deb saw it and realized that God was about to give her another birthday, she teared up! ( 'Beware the ides of March')

We've come a long ways in the last twelve months. A year ago we were deep in discovery about  this myeloma thing. We were facing the possibility of treatment in Arkansas. Looking back on the blessings we have been showered with the past twelve months is an overwhelming demonstration of God's provision and the love and kindness of each of you. Thanks!

If  Deb is up to it I plan on a leisurely drive to Calloway Gardens this Saturday. We have celebrated many events there. It's a favorite spot for us.

Yesterday two angel friends visited and practiced some craft skills with Deb.

Deb said that four deer napped in the back yard during the day as she napped in the sunroom. She enjoys watching them. It makes me feel good that critters are healthy and feel safe in our yard. Perhaps we will be also.

Today is chemo day. We are beginning to think about our next trip to Arkansas the 20th of the month or so based on weather.

Blessings all!

Sunday, March 6, 2011

Eliana-baby dedication service


Today Eliana was dedicated to the Lord. The pastor blessed Eliana with the same prayer I have prayed over my own children so many times: He asked the Lord to cause Eliana to love and serve Jesus all the days of her life.

Eliana's other grandparents David and Linda flew in from Florida. Stephen also joined us. After the service, we all went to lunch at our favorite Mexican  food restaurant in Atlanta.

The dress Eliana wore today is one that Deb smocked about thirty years ago for Amanda. It looked as good today as it did when it was new.

Deb made a tiny bracelet for Eliana. She knotted it between each pearl so Eliana can't break it and loose the pearls.

How about Deb's hair! Growing back thick but note as dark as it was before.

Wednesday, March 2, 2011

Tuesday-another chemo day

Yesterday angel Ema drove 'Ms. Daisy'. Deb has complied a list of Tuesday driver angels for chemo Tuesdays.Thanks all!

Because of the cumulative affects of chemo, Deb was taken off one med a week early. It had dropped her blood pressure downward to the limit and had other affects. That's the benefit of weekly labs.

Oscar the dog is fitting in better and better. Deb now is well protected by 5 pounds of hair. Speaking of hair, Sunday night she asked me to to give her a trim. So, out came the clippers. Anyone else need a trim?