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Morning started with a surprise. At 6:45 am I heard a noise and looked up only to see a beautiful hot air balloon passing overhead. I called Deb and she ran out to see it also.
She had a port with two connectors installed in her left arm. She has had so many ports in her neck that the last time it was recommended to try the arm. The connection winds from her elbow up into the right chamber of her heart. Starting Saturday she will have a portable pump 24/7 pumping chemo formulations into her. One is called the' red devil' and has to be infused by itself because it cannot co-exist with other meds.
Deb has been having intense cramps in her toes and feet due to low potassium. Sure makes her grimace!
Our wonderful UAMS Pharmacist Angel Carla has us set up to get a special drug on Monday that will give some pneumonia protection. This happens before the Monday chemo infusion.
Thinking about how helpless and awful Deb will be feeling soon, she did a little preparation and we got a walk in haircut for her to get her hair cut as short as possible so when it starts falling out soon it will not be so messy. At some point Vern will pull out his electric clippers and give her a buzz job to end the mess.
We think we solved the Comcast issue. After talking to my sixth Comcast rep, I found out that the reason service was delayed was that the last resident in this condo left a sizable balance due. They checked my records and set me up for a self install kit coming in on Monday. It will be so nice not to have to go to Starbucks just for the internet connection. I never lost anything there, if you get my drift!
Angels are coming in Sunday am to pick up Gracie so she doesn't have to hang out with all those wild jets in that hangar! We talked to son Trey from Belgium and daughter Amanda in Atlanta a number of times. Of course, they want to come support their mom.
We are about to start on another grand adventure. We are eager to see how the Lord will guide us! He is faithful!
A little about our doctor, Dr. Frits van Rhee, MD, PhD, MRCP (UK), FRCPath
He is a professor and Director of Clinical Research with the Myeloma Institute here are UAMS. He got his medical degree from Erasmus University in Rotterdam, Netherlands. He trained in internal medicine and hematology in the UK. He trained in bone marrow transplantation at Oxford and the Royal Postgraduate medical school in London. His PhD from the University of London focused on the molecular biology and immunotherapy of chronic myelogenous leukemia. His research has been on leukemia, graft rejections, cytomegalovirus and Epstein-Barr virus induced lymphoma. His present research is on immunotherapy for myeloma. He is a leading expert on Castleman's disease.
He is a member of the Royal College of Physicians of the UK and the Royal College of Pathologists.
We hope we can teach him a few more things. RIGHT???
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DId I mention that we have two interesting neighbors across the street from the condo. One is a struggling church that was severely damaged by a tornado that pulled bricks off the two story building front and back.
The other is a bridge club; you know, the card game! A wealthy player got tired of not being able to play due to location changes and restrictions, so he built the club a very nice home of their own!
Where would our society be without the generosity of the wealthy? Every clinic and facility out here at UAMS has the names of wealthy patrons who used their wealth to provide a lasting facility that benefits us all. Thanks to all the wealthy angels who have shared with us!
I always cringe when politicians talk about the "evil rich". Without the generosity of those with abundance, much good would never be accomplished. What a blessing for you to be the recipient of their generosity there at the hospital. That generosity makes it possible for Dr. van Rhee to practice his extensive medical training. Keep us posted! Love, Mary
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