We had a simple day. Labs this morning followed by a visit to the clinic where we enjoyed fellowship with some classmates. The nurse who calls patients back into the clinic knew us all and soon was calling us back by state and football team, not name. We got a big chuckle over that ! It helped ease the tension.
After we left the clinic I took Deb for lunch and a drive. She played out quickly and requested a trip home for a nap. While she slept I took the car for an oil change and some errands. When I returned I fed her home-made spaghetti with my world famous meat sauce. (You have heard of my meat sauce, haven't you???)
Learning: Deb has very little stamina and needs tons of rest. It's so easy to think she's stronger than she really is because she's looking good and is spunky. This bothers her but reality brings us down to earth: she has cancer and her body has been filled with chemo.
Tuesday, August 31, 2010
Monday, August 30, 2010
Sorrow and loss
Nurse Tina and Deb comfort each other as they learn of the loss of two beloved classmates. One, an older gentleman had been a joy to Tina especially, and the other, part of the 'A Team' as Deb called them {Andrew the patient and Andrew the caregiver}.
Deb had befriended them through many shared hours in 7C,the high risk chemo area. Andrew was young for a myeloma patient...probably in his late thirties. He had the most comprehensive understanding of the disease and the meds.
Deb was a certain comforter to Andrew as his own mother could not be here in his last days. She had shown him such love and acceptance.
We came home in somber tears only to meet a walking miracle. A young New York Couple was on the van and when he came here he was totally helpless and paralyzed. Now he is walking and self-sufficient. He does not have myeloma, but Dr. Barlogie worked with his medical team back home and did dual stem cell transplants which seem to have restored him.
Sunday, August 29, 2010
Clinic Food
Nourishment is important for cancer patients. In the clinic are several small kitchens with snacks for the patients and caregivers. Normally, Deb would rather go hungry than eat Campbell's soups. These are not normal times for her. She consumes these little half cans of vegetable beef with crumbled-up soda crackers in it. She drinks little fruit juices with chipped ice-watered down 50:50.
There are popsicles, fruit cups, ice cream, and coffee.
We'll know it's the big one when she drinks coffee!
Pictures with apologies to Andy Warhol!
Egyptian Classmates
This morning while gathering our Continental breakfast from the hotel chow room, I met and spent a few minutes with Mo and Ekana from Cairo. They had been at the Cleveland Clinic for two years and are now here for myeloma treatment. He has been unable to produce enough stem cells for collection due to having been previously medicated at the other clinic.
I asked Ekana if she still cooks in Arabic style and she lit up! She was so excited that I even knew about Arabic food. I told her about an exchange AF Officer years ago who had treated us to a traditional Saudi family meal. Deb and I also enjoyed the Turkish foods so much when we toured Turkey.
We've seen that the best outcome classmates are the ones whose total treatments have been here. The ones with the biggest problems have been those who had chemo and radiation elsewhere on a 'standard' treatment. This is not a standard-meeting disease. It is varied in each patient and I suppose the custom treatment plans here in Arkansas give the best results for that reason.
Heading out for the clinic now. Deb is happy but weak.
Have a great Sunday!
Vern
I asked Ekana if she still cooks in Arabic style and she lit up! She was so excited that I even knew about Arabic food. I told her about an exchange AF Officer years ago who had treated us to a traditional Saudi family meal. Deb and I also enjoyed the Turkish foods so much when we toured Turkey.
We've seen that the best outcome classmates are the ones whose total treatments have been here. The ones with the biggest problems have been those who had chemo and radiation elsewhere on a 'standard' treatment. This is not a standard-meeting disease. It is varied in each patient and I suppose the custom treatment plans here in Arkansas give the best results for that reason.
Heading out for the clinic now. Deb is happy but weak.
Have a great Sunday!
Vern
Saturday, August 28, 2010
P.S. From Deb
I just read Vern's post and was surprised by his warfare topic since that has been my chain of thought today. Actually this morning, I read an article in an old Guidepost (Thank you Guidepost angel), that was written by a young lady who was in remission and doing monthly maintenance chemo treatments. She raised the topic that this cancer-fight is a fight for the rest of my life. That is an overwhelming thought but the Father reminded me that I'm just like every other believer...cancer is the weapon Satan is using right now but he is still The Enemy.
I Peter 5:8-9 "...Your enemy the devil prowls around like a roaring lion looking for someone to devour. Resist him, standing firm in the faith, because you know that your brothers throughout the world are undergoing the same kinds of sufferings."
Thank you for all you are doing to help us in our fight. We really appreciate your love!
Oh, yes, I need to set the record straight about a picture Vern posted this week. I found a great coloring book of modern designs that I have been taking with me to help pass the time as we wait for treatment. My hands tremble so much that I thought using colored pencils might help. I would love to have done the designs but right now just coloring them is challenge enough.
Thanks, guys. Deb
I Peter 5:8-9 "...Your enemy the devil prowls around like a roaring lion looking for someone to devour. Resist him, standing firm in the faith, because you know that your brothers throughout the world are undergoing the same kinds of sufferings."
Thank you for all you are doing to help us in our fight. We really appreciate your love!
Oh, yes, I need to set the record straight about a picture Vern posted this week. I found a great coloring book of modern designs that I have been taking with me to help pass the time as we wait for treatment. My hands tremble so much that I thought using colored pencils might help. I would love to have done the designs but right now just coloring them is challenge enough.
Thanks, guys. Deb
Typical Saturday
Normal Saturday morning: sleep late, have pancakes, cut the grass, pay the bills, cook out, watch the Bulldogs. Normal life.You know...probably what you and I love to enjoy.A day off for most.
Deb and I were talking this morning about there never being a day off from fighting cancer. One is always engaged, whether in the physical, as in the clinic; or mentally. like planning how to get through the next treatment; spiritually, as in being in a state of constant prayer and dependence on the Lord; or emotionally, as in have a tear in the corner of your eye either for you own condition or for a pitiful classmate. The battle is as pitched as any warfare with first the enemy gaining a foothold, then the battle turning for a while and victory being so close. Weariness, encouragement,fatigue,joy, bitter disappointment all have their time with you. It's anything but stable and predictable.
Several of us have been talking about how cancer in its various forms is all around us. Seems like there are friends and family everywhere that have suffered. Have you noticed how commonplace cancer has become?
In fact, while here in Arkansas this session Vern has had his own small cancer battle while helping Deb with hers. I've had a number of skin cancers treated over the years. Since I'm surrounded by a huge team of cancer fighters,I thought I"d get my own periodic checkup here in the clinic. Many helpful folks have pointed out the smudge of 'oil' on the tip of my nose. Previously I've had the tip of my nose sawed off several times.It left a dark spot on the end of my nose so I had it biopsied again. (More sawing)
The whole top of my pate is pre-cancerous so the docs gave me a strong chemical cream which is listed as a form of chemo to use while here. It turned my pate bright red and raised up ugly crusty scabs where the worst cells are. It burned day and night. Now I am in recovery from this. In order to not gross out everyone, I've worn my cap constantly while in public.
While Deb was getting dressed this morning I ran to the grocery and picked up a few items to get us thru the week. We are so hopeful that we might be released in the late week. We really want to get home for a season. When we come back, we are scheduled to repeat this treatment. Then the finale: the second stem cell transplant. Hopefully, the tests will show full remission and then we'll only return every three months for tests while doing weekly chemo at home. Deb has responded very well to her treatments but has paid a huge price physically.
One of our projects at home is to build Deb a sunroom in our backyard where our small patio had been. Her lifeline to the world has either been a small bedroom window here in Arkansas, or a cluttered kitchen window at home. She is a country gal and loves birds, flowers, clouds, butterflies,etc. She has spent countless hours too weak or unable because of vulnerability to infection to be outdoors. Therefore, knowing she will be up and down the rest of her days, I think it prudent for her to have a place of sunshine and joy. Her happy place! Hopefully she will have it this year. I have long dreamed of her having a spot to leave an art easel up permanently. Perhaps this will be the spot?
We met a new couple today from California. Bill and Bridgett. They have a small watch/jewelry repair business. Bill is the patient. He was wearing a Piper Cub T-shirt so it only took us a flash to connect aviation-wise.He has owned three planes and has just been diagnosed with multiple myeloma. They were full of all the same questions that everyone has and were lost in the huge facility. I told them we needed to connect for a meal later in the week so we could fill them in on all the gouge. I asked where they were staying: turns out---right next door!
When we arrived at the clinic just before 10 am there was a huge crowd of suits and dresses filling the lobby and blocking the doors. I actually had to shoo them to the side so Deb on her walker and another classmate could get in and to the elevator. Later they toured the myeloma clinic all around us. Turns out they were all MDs and spouses. Never seen so many docs in one place. Perhaps a hundred or more?
So, what do you call a crowd of doctors? Each animal family has its own group name. Herds, flocks, murders,schools,coveys....so,what should the crowd of doctors be called? Please post your answers below for our mutual entertainment!
Well, tomorrow we hope to get closer to a safe blood count. Tonight I give another infuser of antibiotics which helps her stay safe.
Blessings all! Thanks for your prayers, cards,letters,calls, and gifts. Each one is like a brick in a large building: part of the greater 'tower of healing' being build here. You are a minister of healing to us.
We are so grateful!
Vern
Deb and I were talking this morning about there never being a day off from fighting cancer. One is always engaged, whether in the physical, as in the clinic; or mentally. like planning how to get through the next treatment; spiritually, as in being in a state of constant prayer and dependence on the Lord; or emotionally, as in have a tear in the corner of your eye either for you own condition or for a pitiful classmate. The battle is as pitched as any warfare with first the enemy gaining a foothold, then the battle turning for a while and victory being so close. Weariness, encouragement,fatigue,joy, bitter disappointment all have their time with you. It's anything but stable and predictable.
Several of us have been talking about how cancer in its various forms is all around us. Seems like there are friends and family everywhere that have suffered. Have you noticed how commonplace cancer has become?
In fact, while here in Arkansas this session Vern has had his own small cancer battle while helping Deb with hers. I've had a number of skin cancers treated over the years. Since I'm surrounded by a huge team of cancer fighters,I thought I"d get my own periodic checkup here in the clinic. Many helpful folks have pointed out the smudge of 'oil' on the tip of my nose. Previously I've had the tip of my nose sawed off several times.It left a dark spot on the end of my nose so I had it biopsied again. (More sawing)
The whole top of my pate is pre-cancerous so the docs gave me a strong chemical cream which is listed as a form of chemo to use while here. It turned my pate bright red and raised up ugly crusty scabs where the worst cells are. It burned day and night. Now I am in recovery from this. In order to not gross out everyone, I've worn my cap constantly while in public.
While Deb was getting dressed this morning I ran to the grocery and picked up a few items to get us thru the week. We are so hopeful that we might be released in the late week. We really want to get home for a season. When we come back, we are scheduled to repeat this treatment. Then the finale: the second stem cell transplant. Hopefully, the tests will show full remission and then we'll only return every three months for tests while doing weekly chemo at home. Deb has responded very well to her treatments but has paid a huge price physically.
One of our projects at home is to build Deb a sunroom in our backyard where our small patio had been. Her lifeline to the world has either been a small bedroom window here in Arkansas, or a cluttered kitchen window at home. She is a country gal and loves birds, flowers, clouds, butterflies,etc. She has spent countless hours too weak or unable because of vulnerability to infection to be outdoors. Therefore, knowing she will be up and down the rest of her days, I think it prudent for her to have a place of sunshine and joy. Her happy place! Hopefully she will have it this year. I have long dreamed of her having a spot to leave an art easel up permanently. Perhaps this will be the spot?
We met a new couple today from California. Bill and Bridgett. They have a small watch/jewelry repair business. Bill is the patient. He was wearing a Piper Cub T-shirt so it only took us a flash to connect aviation-wise.He has owned three planes and has just been diagnosed with multiple myeloma. They were full of all the same questions that everyone has and were lost in the huge facility. I told them we needed to connect for a meal later in the week so we could fill them in on all the gouge. I asked where they were staying: turns out---right next door!
When we arrived at the clinic just before 10 am there was a huge crowd of suits and dresses filling the lobby and blocking the doors. I actually had to shoo them to the side so Deb on her walker and another classmate could get in and to the elevator. Later they toured the myeloma clinic all around us. Turns out they were all MDs and spouses. Never seen so many docs in one place. Perhaps a hundred or more?
So, what do you call a crowd of doctors? Each animal family has its own group name. Herds, flocks, murders,schools,coveys....so,what should the crowd of doctors be called? Please post your answers below for our mutual entertainment!
Well, tomorrow we hope to get closer to a safe blood count. Tonight I give another infuser of antibiotics which helps her stay safe.
Blessings all! Thanks for your prayers, cards,letters,calls, and gifts. Each one is like a brick in a large building: part of the greater 'tower of healing' being build here. You are a minister of healing to us.
We are so grateful!
Vern
Friday, August 27, 2010
Friday evening
Deb had a long full day. She had iv's of platelets and two iv's of blood-AB+ thank you! Then, a painful shot in her tummy and finally...since it is the 27th, her port installed in her upper chest muscle was flushed.(a monthly requirement)
White blood count today= 0.46 CRP=56.90 Getting better slowly. Then home for a break.
Classmates: Carlos from Mobile was put back into the hospital. He now has an unknown rash which has caused his lower legs to turn black. They've been here over 5 months. He can never get well enough to go home for a break.
We now have classmates staying at the Markham from Egypt.
Got to feed a hungry woman then sort out meds for the next week.
Blessings all!
Vern
White blood count today= 0.46 CRP=56.90 Getting better slowly. Then home for a break.
Classmates: Carlos from Mobile was put back into the hospital. He now has an unknown rash which has caused his lower legs to turn black. They've been here over 5 months. He can never get well enough to go home for a break.
We now have classmates staying at the Markham from Egypt.
Got to feed a hungry woman then sort out meds for the next week.
Blessings all!
Vern
Thursday, August 26, 2010
Poem from a friend
All who sail the sea of faith
Find out before too long
How quickly blue skies can grow dark
And gentle winds grow strong
Suddenly fear is like white water
Pounding on the soul
Still we sail on knowing
That our Lord is in control
Sometimes He calms the storm
With a whispered peace be still
He can settle any sea
But it doesn't mean He will
Sometimes He holds us close
And lets the wind and waves go wild
Sometimes He calms the storm
And other times He calms His child
He has a reason for each trial
That we pass through in life
And though we're shaken
We cannot be pulled apart from Christ
No matter how the driving rain beats down
On those who hold to faith
A heart of trust will always
Be a quiet peaceful place
Find out before too long
How quickly blue skies can grow dark
And gentle winds grow strong
Suddenly fear is like white water
Pounding on the soul
Still we sail on knowing
That our Lord is in control
Sometimes He calms the storm
With a whispered peace be still
He can settle any sea
But it doesn't mean He will
Sometimes He holds us close
And lets the wind and waves go wild
Sometimes He calms the storm
And other times He calms His child
He has a reason for each trial
That we pass through in life
And though we're shaken
We cannot be pulled apart from Christ
No matter how the driving rain beats down
On those who hold to faith
A heart of trust will always
Be a quiet peaceful place
Thursday evening
We got in and out of the clinic this morning. While waiting, Deb 'colored'. A gift angel provided Deb with a nice set of drawing and coloring supplies. Thanks gift angels!
Deb has been very weak all day. Her red blood count was very low. I fed her roast beef for lunch and supper. Her white blood count was up to 0.23 (which makes her a germ sponge!) So, I'm giving her two more antibiotic infusers today. Hopefully her counts will get above the threshold of 2.0 soon. Otherwise, she stays in and away from others and has to wear a mask.
Vern
Wednesday, August 25, 2010
Weds evening
White blood counts starting up:
Today-0.15
Tues-0.09
Mon-0.3
Sun-1.51
Sat-4.08
Fri-7.08
Deb has been taking infusers all day. One more to go in an hour. It sure makes IVs easier when you can 'do it yourself at home.'
Many of the things we do here outpatient are done in-patient in other hospitals.
Today-0.15
Tues-0.09
Mon-0.3
Sun-1.51
Sat-4.08
Fri-7.08
Deb has been taking infusers all day. One more to go in an hour. It sure makes IVs easier when you can 'do it yourself at home.'
Many of the things we do here outpatient are done in-patient in other hospitals.
 | ||
| infuser as received from pharmacy |
 |
| Ready to hook up |
 |
| Saline and Heperin to flush Deb's port after infuser is done, Although this goes directly into jugular vein, she can taste it if injected too quickly. |
Tuesday, August 24, 2010
Relationships...one step at a time
Yesterday I ran into one of our doctors-Dr. Ali Javed, from Pakistan. He is a young doctor, probably in his thirties and has assisted us a number of times. Anyway, he and I were in an office and I asked him if any of his family had been affected by the flooding back home. He got a far away look and quietly said that over 20% of the country was underwater. He said he could not bear to watch the news and see his fellow countrymen suffering. I gave him a pat on the shoulder and told him I was sorry.
I was concerned about how he would react to my personal comments. Well, today, I got the answer. I was in the waiting area reading and I heard him greet me. I looked up and saw him and a lady Doctor standing beside me. I had just read a report from one on my old USAF Reserve buddies who is still flying the C-130's that I used to fly. He is in Pakistan doing relief work with our old airplanes. I was able to tell him about Ken Holston's report and he was grateful.
Relationships...built one step at a time.
Here's Ken's report: http://www.afcent.af.mil/photos/media_search.asp?q=pakistan
I was concerned about how he would react to my personal comments. Well, today, I got the answer. I was in the waiting area reading and I heard him greet me. I looked up and saw him and a lady Doctor standing beside me. I had just read a report from one on my old USAF Reserve buddies who is still flying the C-130's that I used to fly. He is in Pakistan doing relief work with our old airplanes. I was able to tell him about Ken Holston's report and he was grateful.
Relationships...built one step at a time.
Here's Ken's report: http://www.afcent.af.mil/photos/media_search.asp?q=pakistan
Tuesday afternoon-a hard day
We spent 6.5 hours in the clinic. Deb's white blood count was 0.09 today. Normal is 3-12.
Her CRP is 82.2 . Normal is 0-10 . This measures your potential for infection.
She's been wearing her mask most all day. It makes breathing very hard.
We brought an infuser home that I have to hook up at 11pm tonight. We are trying to get thru this time of vulnerability without harm. Deb's innards are very inflamed and she has a special mouthwash and some large pills I have to crush and dissolve in water for her to drink.
Because she has lost so much weight, her wedding rings no longer fit. Rather than chance losing them, she dug out her great-grandmothers wedding band. It is engraved inside with their names. Ollie and Gavin Peerey. Deb knew her as Mamie and she was very petite. Gavin had already died when Deb was born. They lived in Mud Creek, outside Adamsville,Tn.
While waiting this morning we met another 'crafty' lady. I traded seats so Linda and Deb could talk jewelry making etc. Deb loves crafts so much it caused her to light up as she was able to think about her beloved hobbies instead of her hated disease.
Her CRP is 82.2 . Normal is 0-10 . This measures your potential for infection.
She's been wearing her mask most all day. It makes breathing very hard.
We brought an infuser home that I have to hook up at 11pm tonight. We are trying to get thru this time of vulnerability without harm. Deb's innards are very inflamed and she has a special mouthwash and some large pills I have to crush and dissolve in water for her to drink.
Because she has lost so much weight, her wedding rings no longer fit. Rather than chance losing them, she dug out her great-grandmothers wedding band. It is engraved inside with their names. Ollie and Gavin Peerey. Deb knew her as Mamie and she was very petite. Gavin had already died when Deb was born. They lived in Mud Creek, outside Adamsville,Tn.
While waiting this morning we met another 'crafty' lady. I traded seats so Linda and Deb could talk jewelry making etc. Deb loves crafts so much it caused her to light up as she was able to think about her beloved hobbies instead of her hated disease.
Monday, August 23, 2010
Monday evening
Deb had a tough long day. She had to have special meds and platelets. She's now resting at the apt after eating a supper of deluxe guacamole. That's what she was craving! Honest! I do my best to satisfy her cravings. I remember another time in life when she had cravings. This time is very different! When she was pregnant with Trey down in Austin,Tx, she had a 'must have or I'll die' craving for boiled shrimp and watermelon...in late November! Guess what? I found it! She filled a plate piled high with shrimp bones.
Her white blood count was .03. She's now extremely vulnerable, so please pray for her protection. Her throat and gut are in distress and she's taking meds to help. Guess my cooking finally did her in ;)
Now, here are a few pix of the facilities we hang out at:
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Spine Center   |
Sunday, August 22, 2010
Sunday Soul Food
Deb was weak but able to go to the clinic using her walker. She's so cute pressing forward on that thing! Don't get in her way!
We had a long wait and some classmates who arrived well after we did were called back into the chemo rooms, finished and left caused Deb's strong sense of fairness to kick in. We couldn't understand why our appointment was taking so long; anyway, by the time she got called in, she was an emotional mess. She had all she could take. She cried and the nurse and I comforted her the best we could.
Eventually we finished and as we boarded the shuttle bus, Deb was telling me she was craving pinto beans and cornbread for lunch. It so happened that as Antoine was driving back to the hotel, he got a call and was taking down a food order for the front desk lady-Latoya. I overheard and asked where he was going to get that kind of food and he told me. I asked if we could drop Deb at the room and go get a takeout order there together. He happily agreed. So, with Deb settled down, Antoine and I started off in a different direction to an unknown-to-me restaurant. On the way, Latoya, now understanding that I was with Antoine, called him and wanted to make sure that I understood where he was taking me and for him to 'take care of me.'
When we arrived, there was a crowd and we joined in the line of 100% black families there for Sunday lunch. I was very much under-dressed and the only white guy there. There was never a problem and they treated me just like everyone else. We laughed at Latoya's concern for me. Of course, at about seven feet tall, Antoine made a good companion: who would have messed with me anyway today?
Antoine and I enjoyed chatting; he's never been to Atlanta, so I tried to update him of the black cultural venues in Atlanta. He is a would-be entertainer and is very interested.
Deb enjoyed her beans and cornbread along with the bonus fried chicken and mac and cheese.
With her appetite so variable and her weight up and down, I try hard to meet Deb's cravings. It's one of the few pleasures she has.
Blessings all!
Vern
We had a long wait and some classmates who arrived well after we did were called back into the chemo rooms, finished and left caused Deb's strong sense of fairness to kick in. We couldn't understand why our appointment was taking so long; anyway, by the time she got called in, she was an emotional mess. She had all she could take. She cried and the nurse and I comforted her the best we could.
Eventually we finished and as we boarded the shuttle bus, Deb was telling me she was craving pinto beans and cornbread for lunch. It so happened that as Antoine was driving back to the hotel, he got a call and was taking down a food order for the front desk lady-Latoya. I overheard and asked where he was going to get that kind of food and he told me. I asked if we could drop Deb at the room and go get a takeout order there together. He happily agreed. So, with Deb settled down, Antoine and I started off in a different direction to an unknown-to-me restaurant. On the way, Latoya, now understanding that I was with Antoine, called him and wanted to make sure that I understood where he was taking me and for him to 'take care of me.'
When we arrived, there was a crowd and we joined in the line of 100% black families there for Sunday lunch. I was very much under-dressed and the only white guy there. There was never a problem and they treated me just like everyone else. We laughed at Latoya's concern for me. Of course, at about seven feet tall, Antoine made a good companion: who would have messed with me anyway today?
Antoine and I enjoyed chatting; he's never been to Atlanta, so I tried to update him of the black cultural venues in Atlanta. He is a would-be entertainer and is very interested.
Deb enjoyed her beans and cornbread along with the bonus fried chicken and mac and cheese.
With her appetite so variable and her weight up and down, I try hard to meet Deb's cravings. It's one of the few pleasures she has.
Blessings all!
Vern
Saturday, August 21, 2010
Saturday evening
Deb just went to bed. The day has ended better than our mid-day adventures previewed. This morning Deb went down hill so quickly I had visions of the eleven days in the hospital we had before. Fortunately, she has perked up; remember, 'perked up' is a relative term!
Her white blood count spiked up, the nurse says she will now drop rapidly. Bottom line: today was a tiring and hard day for bothy of us!
The icing on today's cake was that the gift angels were busy. Several encouraging gifts brought smiles to Deb's face. Thanks !
We met the classmates Wilkersons today. We hope to get to know them.
Finally, son Trey returned to Europe, and Katka and Evelyn returned from visiting her folks in Prague. Here's Evelyn's latest photo:
Her white blood count spiked up, the nurse says she will now drop rapidly. Bottom line: today was a tiring and hard day for bothy of us!
The icing on today's cake was that the gift angels were busy. Several encouraging gifts brought smiles to Deb's face. Thanks !
Finally, son Trey returned to Europe, and Katka and Evelyn returned from visiting her folks in Prague. Here's Evelyn's latest photo:
Saturday am.
Deb is feeling very bad and had to request a bed when we arrived at the chemo clinic.she is getting an iv right now.
Friday, August 20, 2010
Friday afternoon
Today started out well enough...then went down hill. Deb has been feeling more and more able to care for some of her own needs. For example, she peeled several pieces of fruit the past few days. She has been able to get several glasses of water for herself. This morning, after I told her the labs were on our floor several rooms away, she said she thought she could go by herself. So, I stayed in the room while she took herself to labs. My thoughts are that she will feel better about life and herself the more independent she can be. Isn't personal independence almost a definition of normal life? Especially in caring for one's own body needs?
We had a long wait in the clinic and as we were leaving the new clinic, every fire engine and cop in town showed up ....sirens wailing! We almost got stuck in the traffic. After I fed Deb lunch, I left in the car to run a few errands. While out, Deb got very sick and called me back. She has felt bad all afternoon.
Lab results showed an peculiar item today. Because of the chemo, Deb's white blood cell count has been cratering. However, she got her first painful growth factor shot yesterday right in the most tender spot of her tummy, which drove her white blood count way up today. Weird! The nurse assured us this was normal and that the counts would head back down...way down close to zero. So that's where we are headed! Close to zero!
Beware of nurses bearing dull needles!
Vern
We had a long wait in the clinic and as we were leaving the new clinic, every fire engine and cop in town showed up ....sirens wailing! We almost got stuck in the traffic. After I fed Deb lunch, I left in the car to run a few errands. While out, Deb got very sick and called me back. She has felt bad all afternoon.
Lab results showed an peculiar item today. Because of the chemo, Deb's white blood cell count has been cratering. However, she got her first painful growth factor shot yesterday right in the most tender spot of her tummy, which drove her white blood count way up today. Weird! The nurse assured us this was normal and that the counts would head back down...way down close to zero. So that's where we are headed! Close to zero!
Beware of nurses bearing dull needles!
Vern
Thursday, August 19, 2010
View from 25,000 feet-High Flight
Our nation was laid out by surveyors and often the settlers were only miles behind the surveyors. That accounts for the square patterns laid out basically aligned with true north. Many of our nation's founding fathers were surveyors, including George Washington and Abe Lincoln. The profession was as important as physician and attorney in those days.
Anyway, as I wait, I am surrounded by the view and memories of flight. There is no way to explain it to non-aviators.
A WWII Spitfire Pilot from the Battle of Britain made a good try when he wrote a favorite poem of mine and my father's.
High FlightOh! I have slipped the surly bonds of earthAnd danced the skies on laughter-silvered wings; Sunward I've climbed, and joined the tumbling mirth Of sun-split clouds - and done a hundred things You have not dreamed of - wheeled and soared and swung High in the sunlit silence. Hov'ring there I've chased the shouting wind along, and flung My eager craft through footless halls of air. Up, up the long delirious, burning blue, I've topped the windswept heights with easy grace Where never lark, or even eagle flew - And, while with silent lifting mind I've trod The high untresspassed sanctity of space, Put out my hand and touched the face of God. | |
| Pilot Officer Gillespie Magee No 412 squadron, RCAF Killed 11 December 1941 | |
Classmates
As I wrote about yesterday...relationships are so important in life.
Here are some more classmate profiles:
LaToya was our clinic in-processor today. It has been several months since she served us. Today she was absolutely bubbly! I commented that she must be the happiest woman in Little Rock. She said she was! She had dreamed about a needy person she knew and this morning she got good news about his spiritual situation. She could not contain herself!
Carol met us as we got off the shuttle van. She and Deb quickly embraced and checked on each other. She had shared the chemo room with us a lot on our last trip out. She had such bad medical reactions and experiences that she is contemplating just going home to Kentucky and living out whatever days she has remaining. Her joy while home? She raises old-fashioned tomatoes from a family variety. She went home and stayed until all her tomatoes were canned.
Jerry and Pat Mayfield live in their fifth-wheel camper in a campground 20 miles away. They no longer have a home or property. Pat has multiple myeloma and crippling arthritis. Her fingers and toes are curved, crooked, and barely functional. Jerry is from Deb's childhood home-Rose Creek, Tennessee. Rose Creek is a suburb of Adamsville and Selmer,Tn.
When Deb and I first got married and traveled home to meet her Tennessee family, I thought we had reached the end of the earth when we headed out for Rose Creek. Deb's great grandfather's house is still there and occupied by 10th cousin Burley.
Jerry's family lived in an old 1810 log house with no toilet or water. Jerry's great-grandfather was born in that log house in 1839. Jerry was born in the same log house in 1939...100 years later.
Talk about roots!
These are some of our classmates who are living through the same challenges we are.
Vern
Here are some more classmate profiles:
When Deb and I first got married and traveled home to meet her Tennessee family, I thought we had reached the end of the earth when we headed out for Rose Creek. Deb's great grandfather's house is still there and occupied by 10th cousin Burley.
Jerry's family lived in an old 1810 log house with no toilet or water. Jerry's great-grandfather was born in that log house in 1839. Jerry was born in the same log house in 1939...100 years later.
Talk about roots!
These are some of our classmates who are living through the same challenges we are.
Vern
Wednesday, August 18, 2010
Relationships
A big part of the mutual support we classmates give one another is the relations we form.We visit and encourage one another as we wait, ride the shuttle, hang out in the chemo waiting area, sit in the various medical offices. We all look very similar: a frail patient, usually with a mask, slowly moving about, often with head covering, possibly a walker, outer garment on even in hot weather, a chemo pump. The caregivers have book bags or small roller bags with support supplies, reading materials, blankets, etc.
So, we are a distinctive group sharing a foxhole together. Someone used the term 'band of brothers.' That's us!
Carlos is a classmate from Mobile. Back last month when Deb was getting regular iv's of platelets, he got one and it put him in the hospital until today. We would see his wife and encourage her each time. Today Carlos was released from the hospital so he can resume his myeloma treatments. Happiness is an understatement.
Jim is a new relationship. His wife is the myeloma patient. They live near Marianna, Fl. He was raised near Athens and is in his late seventies. He was very talkative and open about growing up as a sharecropper in a family of ten children whose father was seriously injured when Jim was four. His white land owner made sure his family had everything they needed. He would even hold back some of the milk they got from the cows. Weekly he would holler down the road for Jim's family and they would make ice cream together. The ten children got all the much-appreciated hand-me-down clothes and toys. Jim said he never encountered racism until he went to the city. He said on the farm the blacks and whites all worked and played together. Not so in the city!
His occupation was highway paving. His first job was repaving Marianna AFB runways. Later he helped pave the then new I-75 from Atlanta all the way up north. He paved highways as far north as Detroit, always returning home in the south.
Jim's upbringing was remarkable similar to my own father's early years. The austere raising imprinted on my father and much of my own serious nature is heavily influenced by my father's experiences.
As I watch classmates, I see some that don't look like they will make it. It's sad. Couples who clearly love one another. I see such demonstrations of love by most caregivers (Not all! Sometimes I want to take corrective action) On my list of questions to be asked in heaven is this: Why did a loving God allow Godly couples to be split by the death of a spouse? Why Lord? Why?
Twenty five years ago right here in North Little Rock we were here for C-130 training in my USAF Reserve unit. We attended a small neighborhood church. I was very inspired by the seventy year old pastor,whose wife had crippling arthritis. Her fingers were bent backwards. She was pretty helpless and wheelchair bound. The pastor planned his day around her care. He would have meetings, then return home to care for her, all on a regular schedule. His loving care was as if Jesus were caring for her to me. Extreme love!
Later, a Seminary president in South Carolina with a very promising career resigned to care for his sick wife. Many spoke of his example. Later, in my own church, the founder of the church lovingly cared for his wife throughout her alzheimer's disease and eventual death. These examples of Godly men I respected have shown me a pattern of Jesus' care for each of us.
Which also points out what I always told the children: One is always an example to others. Whether it is a good or bad example is up to us.
I love Deb and fully expect her to come out of this disease and lead a long and somewhat normal life. She will have limitations and have to be carefully monitored, but I think she will make it! Wait and see the miracles the Lord will perform!
Vern
So, we are a distinctive group sharing a foxhole together. Someone used the term 'band of brothers.' That's us!
Carlos is a classmate from Mobile. Back last month when Deb was getting regular iv's of platelets, he got one and it put him in the hospital until today. We would see his wife and encourage her each time. Today Carlos was released from the hospital so he can resume his myeloma treatments. Happiness is an understatement.
His occupation was highway paving. His first job was repaving Marianna AFB runways. Later he helped pave the then new I-75 from Atlanta all the way up north. He paved highways as far north as Detroit, always returning home in the south.
Jim's upbringing was remarkable similar to my own father's early years. The austere raising imprinted on my father and much of my own serious nature is heavily influenced by my father's experiences.
As I watch classmates, I see some that don't look like they will make it. It's sad. Couples who clearly love one another. I see such demonstrations of love by most caregivers (Not all! Sometimes I want to take corrective action) On my list of questions to be asked in heaven is this: Why did a loving God allow Godly couples to be split by the death of a spouse? Why Lord? Why?
Twenty five years ago right here in North Little Rock we were here for C-130 training in my USAF Reserve unit. We attended a small neighborhood church. I was very inspired by the seventy year old pastor,whose wife had crippling arthritis. Her fingers were bent backwards. She was pretty helpless and wheelchair bound. The pastor planned his day around her care. He would have meetings, then return home to care for her, all on a regular schedule. His loving care was as if Jesus were caring for her to me. Extreme love!
Later, a Seminary president in South Carolina with a very promising career resigned to care for his sick wife. Many spoke of his example. Later, in my own church, the founder of the church lovingly cared for his wife throughout her alzheimer's disease and eventual death. These examples of Godly men I respected have shown me a pattern of Jesus' care for each of us.
Which also points out what I always told the children: One is always an example to others. Whether it is a good or bad example is up to us.
I love Deb and fully expect her to come out of this disease and lead a long and somewhat normal life. She will have limitations and have to be carefully monitored, but I think she will make it! Wait and see the miracles the Lord will perform!
Vern
Bag Gone!
Today Deb completed the chemo infusion thru the take-everywhere 'bag.' It had two electric pumps and contained two large bags of chemo. It pumped 24x7. Each bag was about 1.5 quarts. She also completed a number of pills and home chemo pills. Now we are gliding into full effects of all the various pills and chemos and the destruction of Deb's immune system to be measured by the daily white blood count. (See previous on neutropenia)
Since she is headed downhill and we have the car here, we left the hospital and drove out to the west end of town. We ate an 'Arkansas Burger' and went looking for several bead stores. Deb makes jewelry out of semi-precious stones. Although she cannot make anything because of her shaky hands and fatigue, she can still look. And look she did!
In the next few days she will have neither the desire nor ability to get out in public. That's the way chemo is!
In the next few days she will have neither the desire nor ability to get out in public. That's the way chemo is!
Tuesday, August 17, 2010
Tuesday night
Deb had some old-fashioned peeled tomatoes and fresh avocado for supper. Later she had some yellow seedless watermelon. She slept most of the afternoon.
The chemo has finally begun kicking in big-time! Misery ahead!
Trey made his flight back to Europe. So glad he was able to visit.
The chemo has finally begun kicking in big-time! Misery ahead!
Trey made his flight back to Europe. So glad he was able to visit.
Coloring
Deb loves all things artsy! She doodles, sketches, draws during most any waits or talks. Patterns are her thing. Guess as a math person she could graph these functions??
Labs in the early morning, Chemo mid morning, just got home at 1:15. We had a little excitement leaving the clinic. There is a large rotating exit. Deb was ahead of me and barely got into the pie-slice door section leaving me behind her holding the infusion pump bag and our other stuff. Someone stopped it just in time to prevent our tubes from being cut!
Gotta watch out for your chemo caddy!
We saw Israel and other classmates today. Chemo has stripped him of his white beard. Otherwise he looked good.
Monday, August 16, 2010
More Tuesday+
...After we finished chemo this afternoon Deb attended several hours of skin care class along with several other women with cancer. I browsed the Medical school bookstore and was impressed by what I don't know while she was in class.
Because we have the car here, we went to eat supper before Deb's white blood cells go down. Then we went to the Whole Foods and picked up some organic foods. Deb was craving radishes. We bought 2 large bundles and I cleaned them carefully and put them in a plastic container. She munches on them like candy. Not my thing!
I found my favorite food -scuppernongs from Georgia! Those are the American wild grapes. Bronze are scuppernongs; purple are muscadines. My grandfather had an overhead arbor. At one time he probably had over 100' growing along an 8' fence also. Hunting,walking in the woods, or down a country dirt road and discovering some on a vine has always the ultimate treat for me. They are typically ripe for picking in the heat of August. I've always thought that the two absolute essentials of Southern life were boiled peanuts and scuppernongs. Yankees have neither, and look how cross they can be! ;)
Deb's legs and feet are swelling a great deal and the chemo is beginning to bite her. She will be housebound soon.
We stopped by Michaels and got a drawing pad and some pencils so she can work on her hand action. She has pretty bad hand shakes. You did know Deb is very artistic, did you not? She has charcoals and oil paintings hanging around the house. Now that she has retired, I am hoping she will enjoy those hobbies more. She also designs and makes jewelry from gold, silver, and semi-precious stones. Hopefully the shakes will end so she has the steadiness required.
Because we have the car here, we went to eat supper before Deb's white blood cells go down. Then we went to the Whole Foods and picked up some organic foods. Deb was craving radishes. We bought 2 large bundles and I cleaned them carefully and put them in a plastic container. She munches on them like candy. Not my thing!
I found my favorite food -scuppernongs from Georgia! Those are the American wild grapes. Bronze are scuppernongs; purple are muscadines. My grandfather had an overhead arbor. At one time he probably had over 100' growing along an 8' fence also. Hunting,walking in the woods, or down a country dirt road and discovering some on a vine has always the ultimate treat for me. They are typically ripe for picking in the heat of August. I've always thought that the two absolute essentials of Southern life were boiled peanuts and scuppernongs. Yankees have neither, and look how cross they can be! ;)
Deb's legs and feet are swelling a great deal and the chemo is beginning to bite her. She will be housebound soon.
We stopped by Michaels and got a drawing pad and some pencils so she can work on her hand action. She has pretty bad hand shakes. You did know Deb is very artistic, did you not? She has charcoals and oil paintings hanging around the house. Now that she has retired, I am hoping she will enjoy those hobbies more. She also designs and makes jewelry from gold, silver, and semi-precious stones. Hopefully the shakes will end so she has the steadiness required.
Blue Bunny sighted in hospital
That's the brand popsicle served in the cancer clinic. One of Deb's chemos requires chipped ice or popsicles 30 minutes prior to taking Melphalan. So, here's Deb and her Blue Bunny!
The theory is that the chemo goes to the warmest part of the body. Since the cancer is not in the mouth, we ice it so it can find the next hotest spot to prevent ulcers.
Monday morning
It is slightly cooler this morning. Yesterday morning was awful. Today will be in the mid-90's. A cold snap!
Deb is 'carrying the bag' until Weds morning. It's like a 15 pound anchor that is attached to her jugular 24 x 7 . Since she has a 5# limit on carrying, that means Vern is always 2-3 feet away carrying the bag. So, I tend to find Deb a comfy chair nearby while I cook, do dishes,etc. I can't be gone too long for the wash or groceries since she may need to move while I'm gone. Fortunately relief comes Weds am when it is removed. The two tubes pinned to her shirt with a tab of tape and a large safety pin make dressing very interesting for her. She has what I call 'Houdini moves' to get her garments on and off while connected. Use your imagination. No pictures! I'd get fired again!
This morning we did our labs at the hotel. A nurse uses an empty room and we get a head start on our day. We have a 9:30 show time for chemo and then a 1:30 class in the spine center.
Deb commented on some of our classmates who were with us this morning. They seem to know her but she does not know them. I reminded her that she met them while suffering from chemo brain last session. Chemo brain does strange things to an otherwise sharp mind.
I talked to the hotel owner Steve this morning. Last session I met his sons who were here visiting. They both live in Seattle. One is an engineer for Microsoft and is a seaplane pilot. The other is an engineer for Google. Bet they have interesting table conversations! Anyway, Steve is headed to Seattle and his son is going to give him a seaplane tour of the great Northwest. I told him that Deb's favorite flying experience was flying with me in a seaplane in and out of Florida lakes. Great sport!
Right now Deb is reading her emails on the iPad. Its lightweight is perfect for her right now.
We are about to head out for the day. Hope yours is wonderful!
We continue to be so thankful for everyone's love and support. We appreciate each one of you!
Vern
Deb is 'carrying the bag' until Weds morning. It's like a 15 pound anchor that is attached to her jugular 24 x 7 . Since she has a 5# limit on carrying, that means Vern is always 2-3 feet away carrying the bag. So, I tend to find Deb a comfy chair nearby while I cook, do dishes,etc. I can't be gone too long for the wash or groceries since she may need to move while I'm gone. Fortunately relief comes Weds am when it is removed. The two tubes pinned to her shirt with a tab of tape and a large safety pin make dressing very interesting for her. She has what I call 'Houdini moves' to get her garments on and off while connected. Use your imagination. No pictures! I'd get fired again!
This morning we did our labs at the hotel. A nurse uses an empty room and we get a head start on our day. We have a 9:30 show time for chemo and then a 1:30 class in the spine center.
Deb commented on some of our classmates who were with us this morning. They seem to know her but she does not know them. I reminded her that she met them while suffering from chemo brain last session. Chemo brain does strange things to an otherwise sharp mind.
I talked to the hotel owner Steve this morning. Last session I met his sons who were here visiting. They both live in Seattle. One is an engineer for Microsoft and is a seaplane pilot. The other is an engineer for Google. Bet they have interesting table conversations! Anyway, Steve is headed to Seattle and his son is going to give him a seaplane tour of the great Northwest. I told him that Deb's favorite flying experience was flying with me in a seaplane in and out of Florida lakes. Great sport!
Right now Deb is reading her emails on the iPad. Its lightweight is perfect for her right now.
We are about to head out for the day. Hope yours is wonderful!
We continue to be so thankful for everyone's love and support. We appreciate each one of you!
Vern
Sunday, August 15, 2010
Sunday
Gracie arrived right on schedule piloted by Steve and Dave. Trey, Stephen, and I were waiting at the fuel pump so Gracie could turn around quickly and beat the afternoon Thunderstorms forecast back in the Atlanta area. As soon as the turn was assured I hurried back to our room to help Deb get ready for the day in the clinic. Chemo, chemo, and more chemo! Steve had gone by our house before he flew out and brought just what Deb needed...more chemo!
It was after 3:30 before we left the clinic and we were hungry. So, lunch was about 4 pm. Then naps. Did I mention that Deb is very tired and needs lots of naps?
The next few days include labs and ... more chemo! She gets the hard stuff in the clinic and then continues chemo via a small case with battery powered pumps here at home. When she wakes, I'll give her more chemo pills!
Blessings!
Vern
It was after 3:30 before we left the clinic and we were hungry. So, lunch was about 4 pm. Then naps. Did I mention that Deb is very tired and needs lots of naps?
The next few days include labs and ... more chemo! She gets the hard stuff in the clinic and then continues chemo via a small case with battery powered pumps here at home. When she wakes, I'll give her more chemo pills!
Blessings!
Vern
Track Gracie this morning as Dave and Steve p/u Trey and Stephen
flightaware.com
N353RV
Note the info on the right side giving more info
Vern
N353RV
Note the info on the right side giving more info
Vern
Saturday, August 14, 2010
Saturday-very interesting!
The boys joined us for breakfast in our room and we began the day with a Skype video call to our first grandchild, Evelyn, who is visiting her other grandparents in Prague, Czech Republic, along with her mother Katka and dog Nadia. Greetings Beda and Bohunka! (The Czech grandparents-Katka's folks)
Then it was time for the clinic...Deb's first official chemo in the new building. After checking in on the kiosk, we proceeded up to the fourth floor and checked in again on that kiosk. We joined the crowd and waited our turn. When Deb's name was called, I explained to the nurse that I was training possible replacement caregivers and asked if we could rotate in since the rules only allow one at a time in the chemo room.
No problem,so Trey started off. He witnessed the check in and lab collection routine, then they needed me to answer some med questions. I had to fess up that I had left some important meds at home and that Gracie partners Dave and Steve were going to bring them Sunday am if they had the weather to fly over. Then they will take the boys back to Peachtree City.
Then Stephen had his turn. Then Trey. Then Stephen. On and on until about 3 pm. Seems like there are still kinks being ironed out in the new clinic operations. The entire UAMC hospital is state run and there is a hiring freeze,so even with the wonderful new facility, there is not enough staff. So, they work longer and harder. Regardless, we are still extremely pleased to be here!
Meanwhile, out in the waiting area, we had a grand old reunion with our classmates. We watched a little golf on the wide screen and chewed the fat over each person's trip home and back and what the docs had said. In our little group were Ga Bulldogs, Mississippi Rebels, Alabama Tide, Auburn Tigers, and Arkansas Razorbacks. Sounds like the SEC is well represented as the fall football season arrives. Fall-102 degrees today?
We got the treatment schedule which looks like an out-process Dr visit on Sept 3d.
That would put our at home date as Sunday Sept 5th if all goes well.
Finally, Deb was released and we caught the shuttle back to our rooms. After a quick break, Deb and I met up with the boys and headed of for the Dixie Cafe for some Southern Cooking. Remember...Trey had not yet had any 'real food.' The table had mashed taters with skins on, fried okra, country steak with white gravy, pinto beans, green beans, shepherd's pie, collard greens, and cornbread! We stuffed ourselves as Deb modeled something new for us. Can you guess what it was?
Then back to the rooms for power naps as everyone was worn out from the day's excitement. Deb in particular since she had been poked and prodded and filled with wonder drugs.
But wait. Something else wonderful was waiting for Deb. Your Mail! Wow! She was delighted! Thanks all! Please keep it coming. It means so much to Deb. Her hand is too shaky to write, but she loves to open and read.
So, that's the way it was on August 14, 2010! A day we are so grateful for!
Vern
No problem,so Trey started off. He witnessed the check in and lab collection routine, then they needed me to answer some med questions. I had to fess up that I had left some important meds at home and that Gracie partners Dave and Steve were going to bring them Sunday am if they had the weather to fly over. Then they will take the boys back to Peachtree City.
Then Stephen had his turn. Then Trey. Then Stephen. On and on until about 3 pm. Seems like there are still kinks being ironed out in the new clinic operations. The entire UAMC hospital is state run and there is a hiring freeze,so even with the wonderful new facility, there is not enough staff. So, they work longer and harder. Regardless, we are still extremely pleased to be here!
Meanwhile, out in the waiting area, we had a grand old reunion with our classmates. We watched a little golf on the wide screen and chewed the fat over each person's trip home and back and what the docs had said. In our little group were Ga Bulldogs, Mississippi Rebels, Alabama Tide, Auburn Tigers, and Arkansas Razorbacks. Sounds like the SEC is well represented as the fall football season arrives. Fall-102 degrees today?
We got the treatment schedule which looks like an out-process Dr visit on Sept 3d.
That would put our at home date as Sunday Sept 5th if all goes well.
Then back to the rooms for power naps as everyone was worn out from the day's excitement. Deb in particular since she had been poked and prodded and filled with wonder drugs.
But wait. Something else wonderful was waiting for Deb. Your Mail! Wow! She was delighted! Thanks all! Please keep it coming. It means so much to Deb. Her hand is too shaky to write, but she loves to open and read.
So, that's the way it was on August 14, 2010! A day we are so grateful for!
Vern
Friday, August 13, 2010
Good Report from Dr Nair!
PTL! Things are going well for Deb. She got an excellent report today.
It was good for Trey and Stephen to spend the day with us in the hospital environment. Although there were only two items on our schedule, we ended up with an all-day waiting game and actually closed down the place. I gave them a tour of all the key locations in case they have to substitute as caregiver.
If the weather holds, Dave and Steve will fly over early Sunday morning and return Stephen and Trey to Atlanta. Trey goes back to Belgium on Tuesday. Stephen goes back to work. We'll keep the car and actually explore as Deb is able.
Speaking of weather-the car temp gage showed 108 when we got in.
Is it hot where you are?
Deb got her line inserted into her jugular vein for the chemo that starts in the morning. She also had the consult with Dr Nair. Our sons took her over for her line procedure while I stayed for a nurse med consult and pharmacy visit.
Tonight I have to sort new meds out for this week. There will be at least nine pills at home plus home chemo.The chemo given in the infusion center includes ten chemo drugs in the chemo cocktails.
Tomorrow starts the real treatment as Deb's immune system begins its downhill slide towards zero. We'll begin the hyper-clean food and environment to protect her. As usual, we ask for your prayers for her protection from infections and bugs.
We are so blessed to have positive lab results. We are so grateful for the Lord's blessing on us!
Vern
It was good for Trey and Stephen to spend the day with us in the hospital environment. Although there were only two items on our schedule, we ended up with an all-day waiting game and actually closed down the place. I gave them a tour of all the key locations in case they have to substitute as caregiver.
If the weather holds, Dave and Steve will fly over early Sunday morning and return Stephen and Trey to Atlanta. Trey goes back to Belgium on Tuesday. Stephen goes back to work. We'll keep the car and actually explore as Deb is able.
Speaking of weather-the car temp gage showed 108 when we got in.
Is it hot where you are?
Deb got her line inserted into her jugular vein for the chemo that starts in the morning. She also had the consult with Dr Nair. Our sons took her over for her line procedure while I stayed for a nurse med consult and pharmacy visit.
Tonight I have to sort new meds out for this week. There will be at least nine pills at home plus home chemo.The chemo given in the infusion center includes ten chemo drugs in the chemo cocktails.
Tomorrow starts the real treatment as Deb's immune system begins its downhill slide towards zero. We'll begin the hyper-clean food and environment to protect her. As usual, we ask for your prayers for her protection from infections and bugs.
We are so blessed to have positive lab results. We are so grateful for the Lord's blessing on us!
Vern
Breakfast with our sons
Trey and Stephen joined Deb and Vern for breakfast at a small corner restaurant. It was good to be together.
Trey is very tired, having flown from Brussels, Atlanta, California, Atlanta, then driving 12 hours to Arkansas. Stephen is also tired from the drive and from working very late the night before.
It's been 25+ years since the four of us have eaten a meal in Arkansas. We were here for 4 months for C-130 Aircraft Commander School at the airbase. The kids were all tykes and we really enjoyed our time here together back then.
This morning I'm giving the tour of the places Deb goes so they can serve as caregivers if need be.
Memories! Shared experiences! So good!
Vern
Trey is very tired, having flown from Brussels, Atlanta, California, Atlanta, then driving 12 hours to Arkansas. Stephen is also tired from the drive and from working very late the night before.
It's been 25+ years since the four of us have eaten a meal in Arkansas. We were here for 4 months for C-130 Aircraft Commander School at the airbase. The kids were all tykes and we really enjoyed our time here together back then.
This morning I'm giving the tour of the places Deb goes so they can serve as caregivers if need be.
Memories! Shared experiences! So good!
Vern
Thursday, August 12, 2010
MRI's, Piano's, and WWI-Beware of nurses bearing needles!
This has been a week of many tests. Today was the bone marrow previously and graphically described followed by a 2 hour MRI with an injection of dye. The MRI area is in the bowels of the hospital complex and is located next to the Gamma Knife.
Anyone know what that is? It is a machine that is used to operate on inoperable brain tumors. It focuses intense gamma radiation from a hemisphere around a patients head. All rays are focused thru the head into that exact spot where the bad tumor is. Not many in the country.
Anyway, I have never enjoyed the MRI area because it had such a dismal look out the windows at basement level; until today, that is! Now it is one of the most beautiful areas! Right outside the windows they built a garden area maintained by the local garden club. It has small tables and seats and a water fountain. It now accesses the new cancer center first floor via a flowing set of steps and ramps. Artwork is plentiful.
These architects hit a home run! Wow!
While Deb was in her MRI I explored. Suddenly I heard classical piano playing. Following the stairs, I saw one of the red-shirted valet parking young men sitting at a Steinway piano in the new cancer center playing his heart out. I sat next to him and enjoyed the music! When he finished the first piece everyone started clapping. I looked up in to the 12 story atrium and saw people on every floor hanging over the glass rails listening and clapping. My picture was taken straight up after most people had moved away from the railing.
Another couple had sat down beside the pianist and after he left we chatted. He is 65 and has smoldering myeloma. He has never had the trauma of any lesions in his body yet is under constant watch in case he gets an outbreak. Their names are Don and Anita. Turns out they reside in north Arkansas and Don has a Comanche 250 airplane; in fact, a 1958 model, the eighth off the production line. They had once lived in Macon, Ga where my grandparents had lived.
As a kid hanging out at the Macon Airport, I had been around Comanche number 1 used on the photos on magazine covers. A Dr William Holden in Macon had owned that plane. Blue fuselage and yellow wings. He was a WWI navy seaplane pilot; yes, I said ONE. He often flew his Comanche on long overwater flights. Each country he has visited was represented by a small flag on the side of his airplane, and he had many flags! That really impressed me a a young man! Before he died, Dr Holden gave my late uncle Hal the WWI leather flying helmet he had used. It was very thick leather, perhaps 1/2" thick and covered head, neck, and shoulder tops. Apparently, it was very cold!
Later in 1972 I flew a Comanche with the late Bob Day who ran Herbert Smart Airport in Macon. We flew it down to Dawson, Ga and back. Bob was a friend of my father and uncle Hal.
Anyone know what that is? It is a machine that is used to operate on inoperable brain tumors. It focuses intense gamma radiation from a hemisphere around a patients head. All rays are focused thru the head into that exact spot where the bad tumor is. Not many in the country.
These architects hit a home run! Wow!
Another couple had sat down beside the pianist and after he left we chatted. He is 65 and has smoldering myeloma. He has never had the trauma of any lesions in his body yet is under constant watch in case he gets an outbreak. Their names are Don and Anita. Turns out they reside in north Arkansas and Don has a Comanche 250 airplane; in fact, a 1958 model, the eighth off the production line. They had once lived in Macon, Ga where my grandparents had lived.
As a kid hanging out at the Macon Airport, I had been around Comanche number 1 used on the photos on magazine covers. A Dr William Holden in Macon had owned that plane. Blue fuselage and yellow wings. He was a WWI navy seaplane pilot; yes, I said ONE. He often flew his Comanche on long overwater flights. Each country he has visited was represented by a small flag on the side of his airplane, and he had many flags! That really impressed me a a young man! Before he died, Dr Holden gave my late uncle Hal the WWI leather flying helmet he had used. It was very thick leather, perhaps 1/2" thick and covered head, neck, and shoulder tops. Apparently, it was very cold!
Later in 1972 I flew a Comanche with the late Bob Day who ran Herbert Smart Airport in Macon. We flew it down to Dawson, Ga and back. Bob was a friend of my father and uncle Hal.
ALERT: Stephen and Trey driving out to Arkansas
Just got the call that they just left Peachtree City enroute to Little Rock. We are happy to have them here to get the lay of the land in case I am unable to to be a caregiver. It's good to have a backup! They should arrive around mid-night.
It's supposed to be 102 degrees here.
Pray for safety and good fellowship for them and all of us.
The plan is for Gracie partners Steve and Dave to fly over early Sunday morning and pick up Stephen and Trey and return them to Peachtree City. Deb and I will keep the car here and see what life with a car is like.
It's supposed to be 102 degrees here.
Pray for safety and good fellowship for them and all of us.
The plan is for Gracie partners Steve and Dave to fly over early Sunday morning and pick up Stephen and Trey and return them to Peachtree City. Deb and I will keep the car here and see what life with a car is like.
Caution: graphic bone marrow procedure
Skip this if you are queasy!
An important part of the medical procedures are periodic bone marrow biopsies and gene-array samples. These tests require bone samples and marrow out of the hip. Deb has had at least one per visit.
Before showing up, Deb takes meds to calm her down and also a fentanyl citrate sucker that is a pain killer. A two person team works to do the procedure.
Here are the tools needed:
The green tool is a small scalpel that is used to slice open the flesh over the marked spot. The T-handle device is the actual boring tool that is pressed hard into the hip bone to core out a section of bone that is needed. The smaller blue tool is a chipping tool inserted into the T-handle to chip bone. Then the syringes are used to pull out the marrow. The first pull is intense and hurts the most. Deb gasps each time on the first pull.
Here's the pull:
Here's what the marrow looks like:
The samples are very important in understanding what the genetic affects of the treatment is and the status of the cancer.
After all, as our blog title says, "It's all about the blood!"
An important part of the medical procedures are periodic bone marrow biopsies and gene-array samples. These tests require bone samples and marrow out of the hip. Deb has had at least one per visit.
The green tool is a small scalpel that is used to slice open the flesh over the marked spot. The T-handle device is the actual boring tool that is pressed hard into the hip bone to core out a section of bone that is needed. The smaller blue tool is a chipping tool inserted into the T-handle to chip bone. Then the syringes are used to pull out the marrow. The first pull is intense and hurts the most. Deb gasps each time on the first pull.
Here's what the marrow looks like:
The samples are very important in understanding what the genetic affects of the treatment is and the status of the cancer.
After all, as our blog title says, "It's all about the blood!"
Wednesday, August 11, 2010
Grandbaby updates & contest
a) Evelyn
b) Eliana
c) Both the above
d) Neither
Evelyn-http://www.flickr.com/photos/treyka/sets/72157623851642461/
Eliana-http://swindyfam.blogspot.com/
Weds-Part II
(continued)
After we finished the PET scan, it was time for Deb to go into the new 12 story cancer center which opened while we were home last. In a word: Incredible! (other words that apply: beautiful, unbelievable, airy, glass everywhere, blessing for all cancer patients, unlike any old medical facility, etc.)
She was impressed! There is a central 12 story atrium and glass walls that give the impression of being outdoors. The elevator shaft is covered in beautiful stone. The furnishings and furniture are all new and ultra-modern.
The hotel shuttle can drop her within a few feet of the entrance. There is a check in kiosk that takes a swipe from a credit card, drivers license, or other id and checks you in: showing you are present 'on campus.' Then each work area has a similar kiosk so your records and schedules can be updated automatically. So, when we walked in for labs to be drawn, another swipe and the records updated! Cool!
So then we got our packet: this is a master schedule along with special instructions for the various tests and general info we need. We keep all this in a notebook we carry everywhere. The clinic also calls us when a time or location changes.
After the official stuff was over, Deb got to look around a little. The small gift shop is in the lobby. They saw she was interested in hats so they sent us to patient support up on the third floor. There was a small atrium library of publications and brochures along with a staff member who was fitting wigs, scarves, and hats provided by a foundation. Deb found a wig that looked almost exactly like her normal hairstyle. (I tried for one but they got wise to me ! ;) This area reminded me a modern library with tables and computer workstations there for patient and caregiver use. Wow!
They had free copies of the cancer institute's research papers that read well over my head!
The sign on the outside of the building was what impressed us most. Micah 6:8 is inscribed as the Rockefeller family verse.
...what doth the LORD require of thee, but to do justly, and to love mercy, and to walk humbly with thy God?
She was impressed! There is a central 12 story atrium and glass walls that give the impression of being outdoors. The elevator shaft is covered in beautiful stone. The furnishings and furniture are all new and ultra-modern.
The hotel shuttle can drop her within a few feet of the entrance. There is a check in kiosk that takes a swipe from a credit card, drivers license, or other id and checks you in: showing you are present 'on campus.' Then each work area has a similar kiosk so your records and schedules can be updated automatically. So, when we walked in for labs to be drawn, another swipe and the records updated! Cool!
So then we got our packet: this is a master schedule along with special instructions for the various tests and general info we need. We keep all this in a notebook we carry everywhere. The clinic also calls us when a time or location changes.
After the official stuff was over, Deb got to look around a little. The small gift shop is in the lobby. They saw she was interested in hats so they sent us to patient support up on the third floor. There was a small atrium library of publications and brochures along with a staff member who was fitting wigs, scarves, and hats provided by a foundation. Deb found a wig that looked almost exactly like her normal hairstyle. (I tried for one but they got wise to me ! ;) This area reminded me a modern library with tables and computer workstations there for patient and caregiver use. Wow!
They had free copies of the cancer institute's research papers that read well over my head!
The sign on the outside of the building was what impressed us most. Micah 6:8 is inscribed as the Rockefeller family verse.
...what doth the LORD require of thee, but to do justly, and to love mercy, and to walk humbly with thy God?
Weds am-PET Scan
We left the hotel at 6:15 am. One of the PET camera systems was down so it took a while. Deb had been fasting since supper.
Because radiation is involved in the process, all the doors are powered and are extremely massive and heavy.
Deb and I sat in a small room. Her blood sugar was tested. Then they brought in a small heavy canister that contained a small shot needle that had radioactive shot within a metal shield. Mostly they are protecting the staff who deal with this stuff everyday.
This test works by fasting to get blood sugar down, then injecting a radioactive sugar. The cancer is 'rude' and grabs all the fresh sugar which means the test can 'see' the areas where the radioactive sugar congregates.
Afterward we ran into Iva Jo and Bubba in the waiting room. Just like Deb, she had back pain in the 2.5 weeks they were home in Mississippi.
Then...on to the first visit in the new cancer center.
But, details on that will be in the next blog.
Vern
Because radiation is involved in the process, all the doors are powered and are extremely massive and heavy.
Deb and I sat in a small room. Her blood sugar was tested. Then they brought in a small heavy canister that contained a small shot needle that had radioactive shot within a metal shield. Mostly they are protecting the staff who deal with this stuff everyday.
Afterward we ran into Iva Jo and Bubba in the waiting room. Just like Deb, she had back pain in the 2.5 weeks they were home in Mississippi.
Then...on to the first visit in the new cancer center.
But, details on that will be in the next blog.
Vern
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